Literature DB >> 12542579

Medical needs of people with intellectual disability require regular reassessment, and the provision of client- and carer-held reports.

A M Kerr1, D McCulloch, K Oliver, B McLean, E Coleman, T Law, P Beaton, S Wallace, E Newell, T Eccles, R J Prescott.   

Abstract

BACKGROUND: Previous work has indicated a wide range of unmet medical health needs in people with intellectual disability (ID).
METHODS: A profile of recorded medical needs was produced for 589 people with ID through a detailed search of individual medical and nursing case records. Specialist optometric and audiological assessments were offered, and reports were provided in technical and plain English terms. A Health Watch project delivered folders with copies of the plain English reports to 60 individuals and carers.
RESULTS: The case record review indicated a wide range of medical disorders; however, exact diagnoses and counselling regarding underlying neurological conditions were seldom recorded. Assessed levels of hearing and vision loss were much greater than had been previously recognized. The Health Watch reports were welcomed by the clients and carers.
CONCLUSIONS: If satisfactory healthcare is to be achieved for people with ID, medical needs must be monitored, regular specialist reassessments offered, access to specialist services facilitated and reports clearly explained to carers.

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Year:  2003        PMID: 12542579     DOI: 10.1046/j.1365-2788.2003.00453.x

Source DB:  PubMed          Journal:  J Intellect Disabil Res        ISSN: 0964-2633


  7 in total

1.  Compliance with dysphagia recommendations by carers of adults with intellectual impairment.

Authors:  Hannah Crawford; Paula Leslie; Michael J Drinnan
Journal:  Dysphagia       Date:  2007-10       Impact factor: 3.438

Review 2.  Access to health care for people with learning disabilities in the UK: mapping the issues and reviewing the evidence.

Authors:  Alison Alborz; Rosalind McNally; Caroline Glendinning
Journal:  J Health Serv Res Policy       Date:  2005-07

3.  Electronic Health Record Analysis of the Primary Care of Adults with Intellectual and Other Developmental Disabilities.

Authors:  Carl Tyler; Sarah Schramm; Matthew Karafa; Anne S Tang; Anil Jain
Journal:  J Policy Pract Intellect Disabil       Date:  2010-09

Review 4.  Health disparities of adults with intellectual disabilities: what do we know? What do we do?

Authors:  Gloria L Krahn; Michael H Fox
Journal:  J Appl Res Intellect Disabil       Date:  2013-07-31

5.  Prevalence of physical conditions and multimorbidity in a cohort of adults with intellectual disabilities with and without Down syndrome: cross-sectional study.

Authors:  Deborah Kinnear; Jill Morrison; Linda Allan; Angela Henderson; Elita Smiley; Sally-Ann Cooper
Journal:  BMJ Open       Date:  2018-02-05       Impact factor: 2.692

6.  Access to health care for older people with intellectual disability: a modelling study to explore the cost-effectiveness of health checks.

Authors:  Annette Bauer; Laurence Taggart; Jill Rasmussen; Chris Hatton; Lesley Owen; Martin Knapp
Journal:  BMC Public Health       Date:  2019-06-07       Impact factor: 3.295

7.  Daily life changes and adaptations investigated in 154 families with a child suffering from a rare disability at a public centre for rare diseases in Northern Italy.

Authors:  G Silibello; P Vizziello; M Gallucci; A Selicorni; D Milani; P F Ajmone; C Rigamonti; S De Stefano; M F Bedeschi; Faustina Lalatta
Journal:  Ital J Pediatr       Date:  2016-08-31       Impact factor: 2.638

  7 in total

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