E C Jessen1, A F Colver, P C Mackie, S N Jarvis. 1. Northumberland Care Trust, Child Health Office, The Bondgate Surgery, Alnwick, Northumberland, UK. e.c.jessen@ncl.ac.uk
Abstract
OBJECTIVE: Information on registers of children with special needs will be more meaningful if a validated measure of the severity of impact of a child's disability on life and family is included. DESIGN: We describe the development and initial validation of a parent-completed questionnaire (Generic Lifestyle Assessment Questionnaire LAQ-G) aimed at measuring such impact. RESULTS: Data were collected on 95 case children, representing various disabilities, and 65 control children without disability, and analysed for case-control, test-re-test and inter-reporter reliability. Multidimensional scaling techniques were then used to derive six domains, representing impact of disability in a structure analogous to the participation domains of the revised International Classification ICF (WHO 2001). CONCLUSIONS: Initial results suggest that the LAQ-G is a reliable measure of the impact of disability for children with a range of common disabling conditions.
OBJECTIVE: Information on registers of children with special needs will be more meaningful if a validated measure of the severity of impact of a child's disability on life and family is included. DESIGN: We describe the development and initial validation of a parent-completed questionnaire (Generic Lifestyle Assessment Questionnaire LAQ-G) aimed at measuring such impact. RESULTS: Data were collected on 95 case children, representing various disabilities, and 65 control children without disability, and analysed for case-control, test-re-test and inter-reporter reliability. Multidimensional scaling techniques were then used to derive six domains, representing impact of disability in a structure analogous to the participation domains of the revised International Classification ICF (WHO 2001). CONCLUSIONS: Initial results suggest that the LAQ-G is a reliable measure of the impact of disability for children with a range of common disabling conditions.
Authors: Beverly A Mulvihill; Martha Slay Wingate; Maja Altarac; Francis X Mulvihill; David T Redden; Joseph Telfair; Mary Ann Pass; Dawn E Ellis Journal: Matern Child Health J Date: 2005-06
Authors: Jérôme Fauconnier; Heather O Dickinson; Eva Beckung; Marco Marcelli; Vicki McManus; Susan I Michelsen; Jackie Parkes; Kathryn N Parkinson; Ute Thyen; Catherine Arnaud; Allan Colver Journal: BMJ Date: 2009-04-24