Literature DB >> 12458112

Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington.

Linda Ganzini1, Maria J Silveira, Wendy S Johnston.   

Abstract

To understand the factors associated with interest in assisted suicide among terminally ill patients, we surveyed 50 caregivers of decedent amyotrophic lateral sclerosis (ALS) patients from Oregon and Washington regarding perceptions of patients' interest in assisted suicide and their physical and emotional state in the last month of life. For 38 caregivers, we had baseline information from the patients themselves, gathered a median of 11 months before death, regarding depression, hopelessness, sense of burden, social support, quality of life, pain, and suffering. According to our respondents, one-third of ALS patients discussed wanting assisted suicide in the last month of life. Hopelessness and interest in assisted suicide at baseline predicted desire for assisted suicide later on. ALS patients who were interested in assisted suicide, compared to those who were not, had greater distress at being a burden to others and more insomnia, pain, and discomfort other than pain.

Entities:  

Keywords:  Death and Euthanasia; Empirical Approach

Mesh:

Year:  2002        PMID: 12458112     DOI: 10.1016/s0885-3924(02)00496-7

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  17 in total

1.  A cross sectional study on determinants of quality of life in ALS.

Authors:  A Chiò; A Gauthier; A Montuschi; A Calvo; N Di Vito; P Ghiglione; R Mutani
Journal:  J Neurol Neurosurg Psychiatry       Date:  2004-11       Impact factor: 10.154

2.  Wish to die in end-stage ALS.

Authors:  S M Albert; J G Rabkin; M L Del Bene; T Tider; I O'Sullivan; L P Rowland; H Mitsumoto
Journal:  Neurology       Date:  2005-07-12       Impact factor: 9.910

3.  Live and let die: existential decision processes in a fatal disease.

Authors:  Dorothée Lulé; Sonja Nonnenmacher; Sonja Sorg; Johanna Heimrath; Martin Hautzinger; Thomas Meyer; Andrea Kübler; Niels Birbaumer; Albert C Ludolph
Journal:  J Neurol       Date:  2014-01-12       Impact factor: 4.849

Review 4.  [A wish to hasten death : what is behind it].

Authors:  S Stiel; F Elsner; M Pestinger; L Radbruch
Journal:  Schmerz       Date:  2010-04       Impact factor: 1.107

5.  Death with dignity in Washington patients with amyotrophic lateral sclerosis.

Authors:  Leo H Wang; Michael A Elliott; Lily Jung Henson; Elba Gerena-Maldonado; Susan Strom; Sharon Downing; Jennifer Vetrovs; Paige Kayihan; Piper Paul; Kate Kennedy; Joshua O Benditt; Michael D Weiss
Journal:  Neurology       Date:  2016-10-21       Impact factor: 9.910

Review 6.  Drug therapy for pain in amyotrophic lateral sclerosis or motor neuron disease.

Authors:  Johannes Brettschneider; Jerome Kurent; Albert Ludolph
Journal:  Cochrane Database Syst Rev       Date:  2013-06-05

Review 7.  Patient-Perceived Outcomes and Quality of Life in ALS.

Authors:  Zachary Simmons
Journal:  Neurotherapeutics       Date:  2015-04       Impact factor: 7.620

Review 8.  What lies behind the wish to hasten death? A systematic review and meta-ethnography from the perspective of patients.

Authors:  Cristina Monforte-Royo; Christian Villavicencio-Chávez; Joaquin Tomás-Sábado; Vinita Mahtani-Chugani; Albert Balaguer
Journal:  PLoS One       Date:  2012-05-14       Impact factor: 3.240

9.  Attitudes Toward Assisted Suicide and Life-Prolonging Measures in Swiss ALS Patients and Their Caregivers.

Authors:  Ralf Stutzki; Ursula Schneider; Stella Reiter-Theil; Markus Weber
Journal:  Front Psychol       Date:  2012-10-25

10.  Resentment, hate, and hope in amyotrophic lateral sclerosis.

Authors:  C Oster; F Pagnini
Journal:  Front Psychol       Date:  2012-11-27
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