Literature DB >> 12436098

Family-centered care coordination for children with special needs across multiple settings.

Linda L Lindeke1, Barbara J Leonard, Betty Presler, Ann Garwick.   

Abstract

Care coordination is a process that involves assessment, planning, implementation, evaluation, education, monitoring, support, and advocacy. Pediatric nurse practitioners (PNPs) are well positioned to coordinate care but may not be well educated about potential conflicts of interest in balancing cost-containment constraints with obtaining maximum quality and quantity of care for children and families with complex needs. The philosophy of family-centered care is embodied in some care coordination models and absent in others. PNPs who aim to support families of children with special health care needs need to understand the complexity of interacting with multiple care coordination models across health and educational settings. PNPs may act as change agents to infuse family-centered care principles into existing and future care coordination models.

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Year:  2002        PMID: 12436098

Source DB:  PubMed          Journal:  J Pediatr Health Care        ISSN: 0891-5245            Impact factor:   1.812


  8 in total

Review 1.  Children's complex care needs: a systematic concept analysis of multidisciplinary language.

Authors:  Maria Brenner; Claire Kidston; Carol Hilliard; Imelda Coyne; Jessica Eustace-Cook; Carmel Doyle; Thelma Begley; Michael J Barrett
Journal:  Eur J Pediatr       Date:  2018-08-08       Impact factor: 3.183

2.  Meeting the needs of children with medical complexity using a telehealth advanced practice registered nurse care coordination model.

Authors:  Rhonda G Cady; Mary Erickson; Scott Lunos; Stanley M Finkelstein; Wendy Looman; Margaret Celebreeze; Ann Garwick
Journal:  Matern Child Health J       Date:  2015-07

3.  How can the principles of complexity science be applied to improve the coordination of care for complex pediatric patients?

Authors:  A G Matlow; J G Wright; B Zimmerman; K Thomson; M Valente
Journal:  Qual Saf Health Care       Date:  2006-04

4.  Adult care transitioning for adolescents with special health care needs: a pivotal role for family centered care.

Authors:  Naomi N Duke; Peter B Scal
Journal:  Matern Child Health J       Date:  2011-01

5.  Mothers of children with special health care needs: documenting the experience of their children's care in the school setting.

Authors:  Lori S Anderson
Journal:  J Sch Nurs       Date:  2009-04-21       Impact factor: 2.835

6.  Pompe disease diagnosis and management guideline.

Authors:  Priya S Kishnani; Robert D Steiner; Deeksha Bali; Kenneth Berger; Barry J Byrne; Laura E Case; Laura Case; John F Crowley; Steven Downs; R Rodney Howell; Richard M Kravitz; Joanne Mackey; Deborah Marsden; Anna Maria Martins; David S Millington; Marc Nicolino; Gwen O'Grady; Marc C Patterson; David M Rapoport; Alfred Slonim; Carolyn T Spencer; Cynthia J Tifft; Michael S Watson
Journal:  Genet Med       Date:  2006-05       Impact factor: 8.822

7.  The Perceived Ease of Use and Usefulness of Loop: Evaluation and Content Analysis of a Web-Based Clinical Collaboration System.

Authors:  Allison M Kurahashi; Jennifer N Stinson; Margaret van Wyk; Stephanie Luca; Trevor Jamieson; Peter Weinstein; Joseph A Cafazzo; Bhadra Lokuge; Eyal Cohen; Adam Rapoport; Amna Husain
Journal:  JMIR Hum Factors       Date:  2018-01-09

8.  Cognitive Factors Associated to Pediculosis Preventive Behaviors Among Mothers of School-Age Children in Chaldoran County, Iran.

Authors:  Ali Nezhadali; Towhid Babazadeh; Haidar Nadrian; Hamid Allahverdipour
Journal:  J Multidiscip Healthc       Date:  2020-01-10
  8 in total

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