Literature DB >> 12435551

The social life of genes: privacy, property and the new genetics.

Margaret Everett1.   

Abstract

With the advent of the Human Genome Project and widespread fears over human cloning and medical privacy, a number of states have moved to protect genetic privacy. Oregon's unique Genetic Privacy Act of 1995, which declared that an individual had property rights to their DNA, has provoked national and international interest and controversy. This paper critically reviews the literature on genetic privacy and gene patenting from law, philosophy, science and anthropology. The debate in Oregon, from 1995 to 2001, illustrates many of the key issues in this emerging area. Both sides of the debate invoke the property metaphor, reinforcing deterministic assumptions and avoiding more fundamental questions about the integrity of the body and self-identity. The anthropological critique of the commodification of the body, and the concept of 'embodiment' are useful in analyzing the debate over DNA as property.

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetic Privacy Act; Genetic Privacy Act (Oregon); Genetics and Reproduction; Legal Approach

Mesh:

Year:  2003        PMID: 12435551     DOI: 10.1016/s0277-9536(02)00007-2

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  6 in total

1.  Biobank governance: heterogeneous modes of ordering and democratization.

Authors:  Herbert Gottweis; Georg Lauss
Journal:  J Community Genet       Date:  2011-12-07

Review 2.  Can you keep a (genetic) secret? The genetic privacy movement.

Authors:  Margaret Everett
Journal:  J Genet Couns       Date:  2004-08       Impact factor: 2.537

3.  Identifying the public's knowledge and intention to use human cloning in Greek urban areas.

Authors:  Georgia Tzamalouka; Pelagia Soultatou; Maria Papadakaki; Sevasti Chatzifotiou; Basil Tarlatzis; Joannes El Chliaoutakis
Journal:  J Assist Reprod Genet       Date:  2005-02       Impact factor: 3.412

4.  Predicting human cloning acceptability: a national Greek survey on the beliefs of the public.

Authors:  Georgia S Tzamalouka; Maria Papadakaki; Pelagia Soultatou; Sevasti Chatzifotiou; Basil Tarlatzis; Joannes El Chliaoutakis
Journal:  J Assist Reprod Genet       Date:  2005-10       Impact factor: 3.412

Review 5.  MicroRNA signatures as biomarkers and therapeutic target for CNS embryonal tumors: the pros and the cons.

Authors:  Tarek Shalaby; Giulio Fiaschetti; Martin Baumgartner; Michael A Grotzer
Journal:  Int J Mol Sci       Date:  2014-11-24       Impact factor: 5.923

Review 6.  Three decades of genetic privacy: a metaphoric journey.

Authors:  Bartha Maria Knoppers; Michael J S Beauvais
Journal:  Hum Mol Genet       Date:  2021-10-01       Impact factor: 6.150

  6 in total

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