Literature DB >> 12101874

Health services research for children with disabilities.

James M Perrin1.   

Abstract

Growing numbers of children and adolescents have long-term disabilities. Research on the epidemiology, clinical care and its improvement, organization, and financing of care for children with disabilities is very limited. Given the cost burden of the nation's chronic diseases and disabilities, the lack of investigation into necessary clinical activities seems remarkable. This article reviews recent research on health services relating to children and adolescents with disabilities and outlines a research agenda in clinical and health services for this population in these study areas.

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Year:  2002        PMID: 12101874      PMCID: PMC2690116          DOI: 10.1111/1468-0009.t01-1-00005

Source DB:  PubMed          Journal:  Milbank Q        ISSN: 0887-378X            Impact factor:   4.911


  53 in total

1.  Changing patterns of conditions among children receiving Supplemental Security Income disability benefits.

Authors:  J M Perrin; K Kuhlthau; T J McLaughlin; S L Ettner; S L Gortmaker
Journal:  Arch Pediatr Adolesc Med       Date:  1999-01

2.  A new definition of children with special health care needs.

Authors:  M McPherson; P Arango; H Fox; C Lauver; M McManus; P W Newacheck; J M Perrin; J P Shonkoff; B Strickland
Journal:  Pediatrics       Date:  1998-07       Impact factor: 7.124

3.  Assessing managed care for children with chronic conditions.

Authors:  K Kuhlthau; D K Walker; J M Perrin; L Bauman; S L Gortmaker; P W Newacheck; R E Stein
Journal:  Health Aff (Millwood)       Date:  1998 Jul-Aug       Impact factor: 6.301

4.  Prevalence and impact of disabling chronic conditions in childhood.

Authors:  P W Newacheck; N Halfon
Journal:  Am J Public Health       Date:  1998-04       Impact factor: 9.308

5.  20-year trends in the prevalence of asthma and chronic airflow obstruction in an HMO.

Authors:  W M Vollmer; M L Osborne; A S Buist
Journal:  Am J Respir Crit Care Med       Date:  1998-04       Impact factor: 21.405

6.  Child health services research. Challenges and opportunities.

Authors:  C B Forrest; L Simpson; C Clancy
Journal:  JAMA       Date:  1997-06-11       Impact factor: 56.272

7.  High-expenditure children with Supplemental Security Income.

Authors:  K Kuhlthau; J M Perrin; S L Ettner; T J McLaughlin; S L Gortmaker
Journal:  Pediatrics       Date:  1998-09       Impact factor: 7.124

8.  Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993.

Authors:  H T Ireys; G F Anderson; T J Shaffer; J M Neff
Journal:  Pediatrics       Date:  1997-08       Impact factor: 7.124

9.  The PedsQL: measurement model for the pediatric quality of life inventory.

Authors:  J W Varni; M Seid; C A Rode
Journal:  Med Care       Date:  1999-02       Impact factor: 2.983

10.  An epidemiologic profile of children with special health care needs.

Authors:  P W Newacheck; B Strickland; J P Shonkoff; J M Perrin; M McPherson; M McManus; C Lauver; H Fox; P Arango
Journal:  Pediatrics       Date:  1998-07       Impact factor: 7.124

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  25 in total

Review 1.  Meeting the health care needs of persons with disabilities.

Authors:  Carolyn M Clancy; Elena M Andresen
Journal:  Milbank Q       Date:  2002       Impact factor: 4.911

2.  Responding to the needs of children with chronic health conditions in an era of health services reform.

Authors:  Anton R Miller; Magdalena A Recsky; Robert W Armstrong
Journal:  CMAJ       Date:  2004-11-23       Impact factor: 8.262

3.  The mental health of young people with disabilities: impact of social conditions.

Authors:  Anne Honey; Eric Emerson; Gwynnyth Llewellyn
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2009-11-06       Impact factor: 4.328

4.  Rewards of parenting children and adolescents with spinal cord injuries.

Authors:  M Morrison; E H Kelly; H F Russell; L C Vogel
Journal:  Spinal Cord       Date:  2016-06-21       Impact factor: 2.772

5.  Access and service use by children with autism spectrum disorders in Medicaid Managed Care.

Authors:  Lisa A Ruble; Craig Anne Heflinger; J William Renfrew; Robert C Saunders
Journal:  J Autism Dev Disord       Date:  2005-02

6.  Caregiver burden and preventive dental care use for US children with special health care needs: a stratified analysis based on functional limitation.

Authors:  Donald L Chi; Beth M McManus; Adam C Carle
Journal:  Matern Child Health J       Date:  2014-05

Review 7.  Violence exposure among children with disabilities.

Authors:  Patricia M Sullivan
Journal:  Clin Child Fam Psychol Rev       Date:  2009-06

8.  The organization and financing of health services for persons with disabilities.

Authors:  Gerben Dejong; Susan E Palsbo; Phillip W Beatty; Gwyn C Jones; Thilo Knoll; Melinda T Neri
Journal:  Milbank Q       Date:  2002       Impact factor: 4.911

9.  Managed care organizational characteristics and health care use among children with special health care needs.

Authors:  Elizabeth Shenkman; Samuel S Wu; John Nackashi; James Sherman
Journal:  Health Serv Res       Date:  2003-12       Impact factor: 3.402

10.  Evidence into practice: evaluating a child-centred intervention for diabetes medicine management. The EPIC Project.

Authors:  Jane P Noyes; Anne Williams; Davina Allen; Peter Brocklehurst; Cynthia Carter; John W Gregory; Carol Jackson; Mary Lewis; Lesley Lowes; Ian T Russell; Joanne Rycroft-Malone; Janice Sharp; Mark Samuels; Rhiannon Tudor Edwards; Rhiannon Whitaker
Journal:  BMC Pediatr       Date:  2010-09-27       Impact factor: 2.125

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