Literature DB >> 12055376

Young adults' perceptions of living with chronic inflammatory bowel disease.

Joanne M Daniel1.   

Abstract

King's (1981, 1995b) Theory of Goal Attainment provided the theoretical framework for this qualitative, descriptive study exploring the perceptions of five young adults living with chronic inflammatory bowel disease (IBD). Through in-depth interviews, the participants had the opportunity to share their perceptions of what mattered most as they lived the experiences of this illness. The uniqueness and individuality of perceptions, the challenges of chronic bowel disease, recommendations for the future, and participants' expectations of healthcare professionals were explored. Persons with chronic IBD are faced with many life-disrupting challenges that profoundly affect their personal, interpersonal, and social systems. This research study supported the premise that understanding the patient's perspective and reaching perceptual accuracy through human-to-human interaction is critical to healthcare outcomes and achievement of the young adult's health goals.

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Year:  2002        PMID: 12055376     DOI: 10.1097/00001610-200205000-00002

Source DB:  PubMed          Journal:  Gastroenterol Nurs        ISSN: 1042-895X            Impact factor:   0.978


  16 in total

1.  The burden of inflammatory bowel disease: a patient-reported qualitative analysis and development of a conceptual model.

Authors:  Jennifer Devlen; Kathleen Beusterien; Linnette Yen; Awais Ahmed; Adam S Cheifetz; Alan C Moss
Journal:  Inflamm Bowel Dis       Date:  2014-03       Impact factor: 5.325

2.  Faecal incontinence and health related quality of life in inflammatory bowel disease patients: Findings from a tertiary care center in South Asia.

Authors:  Duminda Subasinghe; Navarathna Mudiyanselage Meththananda Navarathna; Dharmabandhu Nandadeva Samarasekera
Journal:  World J Gastrointest Pharmacol Ther       Date:  2016-08-06

Review 3.  Psychological Considerations and Interventions in Inflammatory Bowel Disease Patient Care.

Authors:  Tiffany H Taft; Sarah Ballou; Alyse Bedell; Devin Lincenberg
Journal:  Gastroenterol Clin North Am       Date:  2017-10-03       Impact factor: 3.806

4.  Food-related quality of life in patients with inflammatory bowel disease and irritable bowel syndrome.

Authors:  Livia Guadagnoli; Ece A Mutlu; Bethany Doerfler; Ammoura Ibrahim; Darren Brenner; Tiffany H Taft
Journal:  Qual Life Res       Date:  2019-03-21       Impact factor: 4.147

5.  Self-reported Symptom Burden in Individuals with Inflammatory Bowel Disease.

Authors:  Dawn Farrell; Geraldine McCarthy; Eileen Savage
Journal:  J Crohns Colitis       Date:  2015-11-22       Impact factor: 9.071

6.  Health literacy and emotional responses related to fecal incontinence.

Authors:  Kristina Patel; Donna Z Bliss; Kay Savik
Journal:  J Wound Ostomy Continence Nurs       Date:  2010 Jan-Feb       Impact factor: 1.741

Review 7.  Understanding the health and social care needs of people living with IBD: a meta-synthesis of the evidence.

Authors:  Karen Kemp; Jane Griffiths; Karina Lovell
Journal:  World J Gastroenterol       Date:  2012-11-21       Impact factor: 5.742

Review 8.  A systematic review of disease-related stigmatization in patients living with inflammatory bowel disease.

Authors:  Tiffany H Taft; Laurie Keefer
Journal:  Clin Exp Gastroenterol       Date:  2016-03-07

9.  Participants' perspectives on mindfulness-based cognitive therapy for inflammatory bowel disease: a qualitative study nested within a pilot randomised controlled trial.

Authors:  Mariyana Schoultz; Leah Macaden; Gill Hubbard
Journal:  Pilot Feasibility Stud       Date:  2016-01-19

10.  Impact of inflammatory bowel disease on daily life: an online survey by the Korean Association for the Study of Intestinal Diseases.

Authors:  Young Sun Kim; Sung-Ae Jung; Kang-Moon Lee; Soo Jung Park; Tae Oh Kim; Chang Hwan Choi; Hyun Gun Kim; Won Moon; Chang Mo Moon; Hye Kyoung Song; Soo-Young Na; Suk-Kyun Yang
Journal:  Intest Res       Date:  2017-06-12
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