Literature DB >> 12026336

The use of advance directives with adolescents.

L G McAliley1, D C Hudson-Barr, R S Gunning, L A Rowbottom.   

Abstract

Adolescents and their families are sometimes touched by circumstances that force them to have to make difficult "end-of-life" decisions. The American Academy of Pediatrics (AAP) supports giving children a voice in their health care decision-making, but how teens want to be involved in this is not known. The purpose of this study was to explore if adolescents were interested in and comfortable with advance directives (ADs) discussions. Teens between 15 and 18 years of age (N = 107) participated in this interview study. Results of the study yielded a wide range of information about adolescents and ADs. Participants were able to pass a test used for demonstrating decision-making competency. They were willing to answer questions related to their own health care treatments as they envisioned themselves in a coma, and those responses are similar to those reported for adults. The vast majority of participants felt it was "somewhat important" or "very important" for someone their age to have a living will. Most of the adolescent participants did not report feeling uncomfortable discussing these issues.

Entities:  

Mesh:

Year:  2000        PMID: 12026336

Source DB:  PubMed          Journal:  Pediatr Nurs        ISSN: 0097-9805


  7 in total

1.  Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions.

Authors:  Lori Wiener; Sima Bedoya; Haven Battles; Leonard Sender; Keri Zabokrtsky; Kristine A Donovan; Lora M A Thompson; Barbara B Lubrano di Ciccone; Margarita Bobonis Babilonia; Karen Fasciano; Paige Malinowski; Maureen Lyon; Jessica Thompkins; Corey Heath; Denise Velazquez; Karen Long-Traynor; Abigail Fry; Maryland Pao
Journal:  Palliat Support Care       Date:  2022-08

2.  Allowing adolescents and young adults to plan their end-of-life care.

Authors:  Lori Wiener; Sima Zadeh; Haven Battles; Kristin Baird; Elizabeth Ballard; Janet Osherow; Maryland Pao
Journal:  Pediatrics       Date:  2012-10-08       Impact factor: 7.124

3.  Advance care planning for paediatric patients.

Authors: 
Journal:  Paediatr Child Health       Date:  2008-11       Impact factor: 2.253

4.  How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations.

Authors:  Lori Wiener; Elizabeth Ballard; Tara Brennan; Haven Battles; Pedro Martinez; Maryland Pao
Journal:  J Palliat Med       Date:  2008-12       Impact factor: 2.947

5.  Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults.

Authors:  Sima Zadeh; Maryland Pao; Lori Wiener
Journal:  Palliat Support Care       Date:  2014-03-13

6.  Knowledge, attitudes, and preferences of healthy young adults regarding advance care planning: a focus group study of university students in Pittsburgh, USA.

Authors:  Dio Kavalieratos; Natalie C Ernecoff; Jessica Keim-Malpass; Howard B Degenholtz
Journal:  BMC Public Health       Date:  2015-02-27       Impact factor: 3.295

7.  Assessing children's competence to consent in research by a standardized tool: a validity study.

Authors:  Irma M Hein; Pieter W Troost; Robert Lindeboom; Martine C de Vries; C Michel Zwaan; Ramón J L Lindauer
Journal:  BMC Pediatr       Date:  2012-09-25       Impact factor: 2.125

  7 in total

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