Literature DB >> 12014983

The doctor's dilemma: challenges for the primary care physician caring for the child with special health care needs.

Emily J Davidson1, Thomas J Silva, Lisa A Sofis, Michael L Ganz, Judith S Palfrey.   

Abstract

OBJECTIVE: To identify barriers to providing quality primary care to children with special health care needs (CSHCN).
METHODOLOGY: Descriptive cross-sectional needs assessment of primary care physicians caring for CSHCN. The population consists of 30 physicians from 2 health centers and 4 private offices participating in an intervention study designed to enhance primary care for CSHCN and 20 physicians from comparable sites (2 health centers, 5 private offices). An 86-item questionnaire was administered to participants.
RESULTS: Among these physicians who care for large numbers of CSHCN, over 70% were satisfied with specialist care, emergency room, and hospital care. By contrast, fewer than 50% reported satisfaction with mental health services, information available for families, access to case managers, and resources for transition-to-adult services. Seventy-one percent reported that compensation systems affected care, and more than half the physicians reported needing more time or staff to provide optimal care for CSHCN.
CONCLUSIONS: Experienced physicians providing primary care for large numbers of CSHCN report that their care is adversely affected by compensation systems. There is extensive dissatisfaction with the availability of mental health services, access to community resources, transition services, and availability of written information for families.

Entities:  

Mesh:

Year:  2002        PMID: 12014983     DOI: 10.1367/1539-4409(2002)002<0218:tdsdcf>2.0.co;2

Source DB:  PubMed          Journal:  Ambul Pediatr        ISSN: 1530-1567


  11 in total

1.  Physician identification and management of psychosocial problems in primary care.

Authors:  Michael M Steele; Amanda S Lochrie; Michael C Roberts
Journal:  J Clin Psychol Med Settings       Date:  2010-06

2.  A longitudinal study of a pediatric practice-based versus an agency-based model of care coordination for children and youth with special health care needs.

Authors:  David Wood; Nancy Winterbauer; Phyllis Sloyer; Edessa Jobli; Tao Hou; Quimby McCaskill; William C Livingood
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3.  Individual and practice characteristics associated with physician provision of recommended care for children with special health care needs.

Authors:  Dennis Z Kuo; James M Robbins; Katherine H Burns; Patrick H Casey
Journal:  Clin Pediatr (Phila)       Date:  2011-02-27       Impact factor: 1.168

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Authors:  Ronald C Samuels; Jihong Liu; Lisa A Sofis; Judith S Palfrey
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Review 5.  Taking stock of the CSHCN screener: a review of common questions and current reflections.

Authors:  Christina D Bethell; Stephen J Blumberg; Ruth E K Stein; Bonnie Strickland; Julie Robertson; Paul W Newacheck
Journal:  Acad Pediatr       Date:  2014-12-05       Impact factor: 3.107

6.  A multi-method assessment of satisfaction with services in the medical home by parents of children and youth with special health care needs (CYSHCN).

Authors:  David L Wood; Quimby E McCaskill; Nancy Winterbauer; Edessa Jobli; Tao Hou; Peter S Wludyka; Kristi Stowers; William Livingood
Journal:  Matern Child Health J       Date:  2008-02-15

7.  Oral health services within community-based organizations for young children with special health care needs.

Authors:  Stephanie Cruz; Donald L Chi; Colleen E Huebner
Journal:  Spec Care Dentist       Date:  2016-03-29

8.  Variations in neurodegenerative disease across the UK: findings from the national study of Progressive Intellectual and Neurological Deterioration (PIND).

Authors:  G Devereux; L Stellitano; C M Verity; A Nicoll; R G Will; P Rogers
Journal:  Arch Dis Child       Date:  2004-01       Impact factor: 3.791

9.  Co-creation of a digital tool for the empowerment of parents of children with physical disabilities.

Authors:  M W Alsem; K M van Meeteren; M Verhoef; M J W M Schmitz; M J Jongmans; J M A Meily-Visser; M Ketelaar
Journal:  Res Involv Engagem       Date:  2017-12-11

10.  Incidence rates of progressive childhood encephalopathy in Oslo, Norway: a population based study.

Authors:  Petter Stromme; Oivind Juris Kanavin; Michael Abdelnoor; Berit Woldseth; Terje Rootwelt; Jorgen Diderichsen; Bjorn Bjurulf; Finn Sommer; Per Magnus
Journal:  BMC Pediatr       Date:  2007-06-27       Impact factor: 2.125

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