Literature DB >> 11929374

Measuring quality of life in children with attention-deficit/hyperactivity disorder and their families: development and evaluation of a new tool.

Jeanne M Landgraf1, Michael Rich, Leonard Rappaport.   

Abstract

OBJECTIVE: To psychometrically evaluate a new parent-completed questionnaire that measures the effect of attention-deficit/hyperactivity disorder (ADHD) on the everyday well-being of children and their families.
SETTING: Using a mail-out/mail-back method, the sample was drawn from the registry of an outpatient developmental and behavioral program of a large tertiary pediatric hospital. All children received medication for ADHD. PARTICIPANTS: Responses were received for 81 children of whom 60 (74%) were boys. An even split of questionnaires was returned for children with ADHD primarily inattentive (50%) and ADHD combined (50%). The condition of 70 patients (86%) had been diagnosed for 1 year or longer; 69 patients (89%) reported receiving medication. MAIN OUTCOME MEASURE: The ADHD Impact Module, HealthAct, Boston, Mass, developed with input from families, measures the effect of the disorder on the child's emotional-social well-being (Child Scale, 8 items) and the family (Home Scale, 10 items).
RESULTS: The scales exceeded standard criteria for item convergent and discriminant validity. No floor effects and minimal (2%) ceiling effects were observed. Cronbach alpha was 0.88 and 0.93 (Child and Home Scales), respectively. Raw scale scores are transformed on a 0 through 100 continuum; a higher score indicates more favorable findings. Statistically significant differences (P<.000) were observed for ADHD inattentive vs ADHD combined on both scales (Child, 65.26 vs 48.86; Home, 72.79 vs 51.26). Better "success at home" scores were reported by parents of ADHD inattentive children (Child Scale, 62.12 vs 47.36, P =.00; Home Scale, 70.58 vs 47.01, P =.000).
CONCLUSIONS: The ADHD Impact Module meets stringent psychometric standards. Further validation is required, but current evidence suggests it is a promising new questionnaire.

Entities:  

Mesh:

Year:  2002        PMID: 11929374     DOI: 10.1001/archpedi.156.4.384

Source DB:  PubMed          Journal:  Arch Pediatr Adolesc Med        ISSN: 1072-4710


  26 in total

1.  Validity of the health-related quality of life assessment in the ADORE study: Parent Report Form of the CHIP-Child Edition.

Authors:  Anne W Riley; David Coghill; Christopher B Forrest; Maria J Lorenzo; Stephen J Ralston; Georg Spiel
Journal:  Eur Child Adolesc Psychiatry       Date:  2006-12       Impact factor: 4.785

2.  Factors related to health-related quality of life (HRQoL) among children with ADHD in Europe at entry into treatment.

Authors:  Anne W Riley; Georg Spiel; David Coghill; Manfred Döpfner; Bruno Falissard; Maria J Lorenzo; Ulrich Preuss; Stephen J Ralston
Journal:  Eur Child Adolesc Psychiatry       Date:  2006-12       Impact factor: 4.785

3.  Which factors impact on clinician-rated impairment in children with ADHD?

Authors:  David Coghill; Georg Spiel; Gisli Baldursson; Manfred Döpfner; Maria J Lorenzo; Stephen J Ralston; Aribert Rothenberger
Journal:  Eur Child Adolesc Psychiatry       Date:  2006-12       Impact factor: 4.785

Review 4.  The impact of medications on quality of life in attention-deficit hyperactivity disorder: a systematic review.

Authors:  David Coghill
Journal:  CNS Drugs       Date:  2010-10       Impact factor: 5.749

5.  Effect of atomoxetine on quality of life and family burden: results from a randomized, placebo-controlled, double-blind study in children and adolescents with ADHD and comorbid oppositional defiant or conduct disorder.

Authors:  Peter M Wehmeier; Alexander Schacht; Ralf W Dittmann; Karin Helsberg; Christian Schneider-Fresenius; Martin Lehmann; Monika Bullinger; Ulrike Ravens-Sieberer
Journal:  Qual Life Res       Date:  2010-12-07       Impact factor: 4.147

6.  Assessing treatment outcomes in attention-deficit/hyperactivity disorder: a narrative review.

Authors:  Jeffery N Epstein; Margaret D Weiss
Journal:  Prim Care Companion CNS Disord       Date:  2012-11-29

7.  Resting metabolic rate, pulmonary functions, and body composition parameters in children with attention deficit hyperactivity disorder.

Authors:  Ahmet Hamdi Alpaslan; Kagan Ucok; Kerem Şenol Coşkun; Abdurrahman Genc; Hatice Karabacak; Halil Ibrahim Guzel
Journal:  Eat Weight Disord       Date:  2015-11-16       Impact factor: 4.652

8.  Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders.

Authors:  Leslie A Markowitz; Charina Reyes; Rebecca A Embacher; Leslie L Speer; Nancy Roizen; Thomas W Frazier
Journal:  Autism       Date:  2015-12-10

9.  Effects of clonidine and methylphenidate on family quality of life in attention-deficit/hyperactivity disorder.

Authors:  Michael Cannon; William H Pelham; F Randy Sallee; Donna R Palumbo; Oscar Bukstein; W Burl Daviss
Journal:  J Child Adolesc Psychopharmacol       Date:  2009-10       Impact factor: 2.576

10.  Does switching from oral extended-release methylphenidate to the methylphenidate transdermal system affect health-related quality-of-life and medication satisfaction for children with attention-deficit/hyperactivity disorder?

Authors:  Oscar G Bukstein; L Eugene Arnold; Jeanne M Landgraf; Paul Hodgkins
Journal:  Child Adolesc Psychiatry Ment Health       Date:  2009-12-10       Impact factor: 3.033

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