Literature DB >> 11908581

Health care provision in pediatric rheumatology in Germany--national rheumatologic database.

Kirsten Minden1, Martina Niewerth, Joachim Listing, Angela Zink.   

Abstract

OBJECTIVE: To describe the health care provision for children and adolescents with chronic arthritides in Germany in 1998.
METHODS: Data were analyzed from the German pediatric rheumatologic database of the year 1998. It contains clinical and patient questionnaire data for 2488 patients with rheumatic diseases seen at 18 pediatric rheumatology units.
RESULTS: A total of 1811 of all patients recorded in the database had chronic arthritides--931 with juvenile chronic arthritis, 86 with juvenile spondyloarthropathy, and 65 with juvenile psoriatic arthritis were considered in the analysis. These patients seen by pediatric rheumatologists had a median age of 10 years and a median disease duration of 4 years. The majority were being treated at pediatric rheumatology disease centers and at universities. Nonsteroidal antiinflammatory drugs were the most commonly used drugs for all forms of chronic arthritides. Almost half the patients with chronic arthritides received disease modifying antirheumatic drugs, with methotrexate the most frequently prescribed agent. While the majority of patients reported having physiotherapy, low prescription rates were noted for comprehensive measures such as occupational therapy and patient education. Only a few patients showed severe functional limitation, 2% of them being rated in Steinbrocker class III or higher. While the patients' functional limitation correlated with disease activity, neither disease duration nor sex, arthritis subgroup nor time span to the first visit at the rheumatology unit had any relevant influence on functional status.
CONCLUSION: The data reveal the spectrum of patients with chronic arthritides seen by German pediatric rheumatologists, as well as the treatment patterns of their physicians.

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Mesh:

Year:  2002        PMID: 11908581

Source DB:  PubMed          Journal:  J Rheumatol        ISSN: 0315-162X            Impact factor:   4.666


  18 in total

1.  [Quality of life and psychosocial adaptation in children and adolescents with juvenile idiopathic arthritis and reactive arthritis].

Authors:  E Müller-Godeffroy; H Lehmann; R M Küster; U Thyen
Journal:  Z Rheumatol       Date:  2005-04       Impact factor: 1.372

2.  Evidence-based use of methotrexate in children with rheumatic diseases: a consensus statement of the Working Groups Pediatric Rheumatology Germany (AGKJR) and Pediatric Rheumatology Austria.

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Review 3.  [Biologics in the treatment of juvenile idiopathic arthritis : A comparison of mono- and combination therapy with synthetic DMARDs].

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Journal:  Z Rheumatol       Date:  2019-09       Impact factor: 1.372

Review 4.  Recommendations for the use of methotrexate in juvenile idiopathic arthritis.

Authors:  Tim Niehues; Petra Lankisch
Journal:  Paediatr Drugs       Date:  2006       Impact factor: 3.022

5.  [Quality of a multidisciplinary orthopaedic-rheumatological consultation].

Authors:  S Mayer-Wagner; F Wiendl; S Schewe; M Grünke; H Schulze-Koops; P Delhey; B M Holzapfel; V Jansson; J Hausdorf
Journal:  Z Rheumatol       Date:  2010-10       Impact factor: 1.372

Review 6.  [The National Database of the German Arthritis Centres--a 12 year balance].

Authors:  A Zink; D Huscher; M Schneider
Journal:  Z Rheumatol       Date:  2006-03       Impact factor: 1.372

7.  [Systemic inflammatory rheumatic diseases competence network].

Authors:  C Rufenach; G-R Burmester; H Zeidler; A Radbruch
Journal:  Internist (Berl)       Date:  2004-04       Impact factor: 0.743

8.  Sleep disturbances and behavior problems in children with and without arthritis.

Authors:  Teresa M Ward; Jennifer Sonney; Sarah Ringold; Shellie Stockfish; Carol A Wallace; Carol A Landis
Journal:  J Pediatr Nurs       Date:  2014-03-15       Impact factor: 2.145

9.  Approach to switching biologics in juvenile idiopathic arthritis: a real-life experience.

Authors:  Şerife Gül Karadağ; Fatma Gül Demirkan; Rahime Koç; Figen Çakmak; Hafize Emine Sönmez; Nuray Aktay Ayaz
Journal:  Rheumatol Int       Date:  2021-04-12       Impact factor: 2.631

10.  The majority of newly diagnosed patients with juvenile idiopathic arthritis reach an inactive disease state within the first year of specialised care: data from a German inception cohort.

Authors:  Claudia Sengler; Jens Klotsche; Martina Niewerth; Ina Liedmann; Dirk Föll; Arnd Heiligenhaus; Gerd Ganser; Gerd Horneff; Johannes-Peter Haas; Kirsten Minden
Journal:  RMD Open       Date:  2015-12-08
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