Literature DB >> 11841105

Through the community looking glass: reevaluating the ethical and policy implications of research on adolescent risk and sociopathology.

C B Fisher1, S A Wallace.   

Abstract

Drawing on a conception of scientists and community members as partners in the construction of ethically responsible research practices, this article urges investigators to seek the perspectives of teenagers and parents in evaluating the personal and political costs and benefits of research on adolescent risk behaviors. Content analysis of focus group discussions involving over 100 parents and teenagers from diverse ethnic and socioeconomic backgrounds revealed community opinions regarding the scientific merit, social value, racial bias, and participant and group harms and benefits associated with surveys, informant reports, intervention studies, blood sampling, and genetic research on youth problems. Participants comments highlight new directions for socially responsible research.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach

Mesh:

Year:  2000        PMID: 11841105     DOI: 10.1207/S15327019EB1002_01

Source DB:  PubMed          Journal:  Ethics Behav        ISSN: 1050-8422


  23 in total

1.  Engaging African-Americans about biobanks and the return of research results.

Authors:  Colin Me Halverson; Lainie Friedman Ross
Journal:  J Community Genet       Date:  2012-03-28

2.  Addiction research ethics and the Belmont principles: do drug users have a different moral voice?

Authors:  Celia B Fisher
Journal:  Subst Use Misuse       Date:  2010-11-15       Impact factor: 2.164

Review 3.  Public willingness to participate in and public opinions about genetic variation research: a review of the literature.

Authors:  Rene Sterling; Gail E Henderson; Giselle Corbie-Smith
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

4.  Marginalized populations and drug addiction research: realism, mistrust, and misconception.

Authors:  Celia B Fisher; Matthew Oransky; Meena Mahadevan; Merrill Singer; Greg Mirhej; Derrick Hodge
Journal:  IRB       Date:  2008 May-Jun

5.  Reducing Health Disparities and Enhancing the Responsible Conduct of Research Involving LGBT Youth.

Authors:  Celia B Fisher; Brian Mustanski
Journal:  Hastings Cent Rep       Date:  2014-09       Impact factor: 2.683

6.  Bisexual Invisibility and the Sexual Health Needs of Adolescent Girls.

Authors:  Miriam R Arbeit; Celia B Fisher; Kathryn Macapagal; Brian Mustanski
Journal:  LGBT Health       Date:  2016-09-07       Impact factor: 4.151

7.  Self-Consent for HIV Prevention Research Involving Sexual and Gender Minority Youth: Reducing Barriers Through Evidence-Based Ethics.

Authors:  Celia B Fisher; Miriam R Arbeit; Melissa S Dumont; Kathryn Macapagal; Brian Mustanski
Journal:  J Empir Res Hum Res Ethics       Date:  2016-03-07       Impact factor: 1.742

8.  Legal and ethical values in the resolution of research-related disputes: how can IRBS respond to participant complaints?

Authors:  Kristen Underhill
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

9.  Confidentiality, privacy, and respect: experiences of female sex workers participating in HIV research in Andhra Pradesh, India.

Authors:  Elizabeth Reed; Kaveh Khoshnood; Kim M Blankenship; Celia B Fisher
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

10.  Barriers and opportunities for recruitment for nonintervention studies on HIV risk: perspectives of street drug users.

Authors:  Matthew Oransky; Celia B Fisher; Meena Mahadevan; Merrill Singer
Journal:  Subst Use Misuse       Date:  2009       Impact factor: 2.164

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