Literature DB >> 11837367

Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia.

Pia Asbring1, Anna-Liisa Närvänen.   

Abstract

Chronic fatigue syndrome and fibromyalgia are characterized by being difficult to diagnose and having an elusive etiology and no clear-cut treatment strategy. The question of whether these illnesses are stigmatizing was investigated through interviews with 25 women with these illnesses. The women experienced stigmatization primarily before receiving a diagnosis, and the diffuse symptomatology associated with the illnesses were significant for stigmatization. Stigma consisted of questioning the veracity, morality, and accuracy of patient symptom descriptions and of psychologizing symptoms. Coping with stigma was also explored and found to comprise both withdrawal and approach strategies, depending on the individual's circumstances and goals.

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Year:  2002        PMID: 11837367     DOI: 10.1177/104973230201200202

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  50 in total

1.  Impact of invalidation and trust in physicians on health outcomes in fibromyalgia patients.

Authors:  Carroline P Lobo; Andrea R Pfalzgraf; Vincent Giannetti; Gibbs Kanyongo
Journal:  Prim Care Companion CNS Disord       Date:  2014-10-09

Review 2.  A review and meta-synthesis of qualitative studies on myalgic encephalomyelitis/chronic fatigue syndrome.

Authors:  Valerie R Anderson; Leonard A Jason; Laura E Hlavaty; Nicole Porter; Jacqueline Cudia
Journal:  Patient Educ Couns       Date:  2011-05-14

3.  Validation of the Health-Related Felt Stigma and Concealment Questionnaire.

Authors:  Kelsey T Laird; Craig A Smith; Steven D Hollon; Lynn S Walker
Journal:  J Pediatr Psychol       Date:  2020-06-01

4.  The process of acceptance among rheumatoid arthritis patients in Switzerland: a qualitative study.

Authors:  Zlatina Kostova; Maria Caiata-Zufferey; Peter J Schulz
Journal:  Pain Res Manag       Date:  2014-02-13       Impact factor: 3.037

5.  Patients' and professionals' views on managing fibromyalgia.

Authors:  Erica Briones-Vozmediano; Carmen Vives-Cases; Elena Ronda-Pérez; Diana Gil-González
Journal:  Pain Res Manag       Date:  2013 Jan-Feb       Impact factor: 3.037

6.  Evaluation of the impact of fibromyalgia on patients' sleep and the content validity of two sleep scales.

Authors:  Susan Martin; Arthi Chandran; Laurie Zografos; Gergana Zlateva
Journal:  Health Qual Life Outcomes       Date:  2009-07-10       Impact factor: 3.186

7.  Medication and the patient-doctor relationship: a qualitative study with patients suffering from fibromyalgia.

Authors:  Christine Durif-Bruckert; Pauline Roux; Hugues Rousset
Journal:  Health Expect       Date:  2014-07-03       Impact factor: 3.377

8.  Avoiding humiliations in the clinical encounter.

Authors:  Kirsti Malterud; Hanne Hollnagel
Journal:  Scand J Prim Health Care       Date:  2007-06       Impact factor: 2.581

9.  Validation of the International Classification of Functioning, Disability and Health Core Set for chronic widespread pain from the perspective of fibromyalgia patients.

Authors:  Robin Hieblinger; Michaela Coenen; Gerold Stucki; Andreas Winkelmann; Alarcos Cieza
Journal:  Arthritis Res Ther       Date:  2009-05-14       Impact factor: 5.156

Review 10.  The expressed needs of people with chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review.

Authors:  Maria de Lourdes Drachler; Jose Carlos de Carvalho Leite; Lee Hooper; Chia Swee Hong; Derek Pheby; Luis Nacul; Eliana Lacerda; Peter Campion; Anne Killett; Maggie McArthur; Fiona Poland
Journal:  BMC Public Health       Date:  2009-12-11       Impact factor: 3.295

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