Literature DB >> 11797923

Chronic pain in childhood and the medical encounter: professional ventriloquism and hidden voices.

Bernie Carter1.   

Abstract

This article is a report on the experiences of three children with chronic pain and their families. The children and families experienced numerous encounters with health professionals during their "quest for a diagnosis"for chronic pain. In a high proportion of these encounters, the children/families felt they were judged, disbelieved, and labeled as difficult or dysfunctional, and this compounded the stresses they were already dealing with. The families described situations in which their accounts of pain were reinterpreted through a variety of professional lenses, and the children felt that their voices were muted or ignored. Professional ventriloquism is presented as a means of exploring the way in which the child's words are reinterpreted and mistranslated through professionals' own paradigms of understanding. Professionals need to stand back from what they believe to determine what the children themselves know about their pain.

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Mesh:

Year:  2002        PMID: 11797923     DOI: 10.1177/104973230201200103

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  21 in total

1.  The 2010 Annual Conference of the Canadian Pain Society.

Authors: 
Journal:  Pain Res Manag       Date:  2010 Mar-Apr       Impact factor: 3.037

2.  What do the parents of children who have chronic pain expect from their first visit to a pediatric chronic pain clinic?

Authors:  Kathy Reid; Janice Lander; Shannon Scott; Bruce Dick
Journal:  Pain Res Manag       Date:  2010 May-Jun       Impact factor: 3.037

3.  Disclosure and self-report of emotional, social, and physical health in children and adolescents with chronic pain--a qualitative study of PROMIS pediatric measures.

Authors:  C Jeff Jacobson; Jennifer E Farrell; Susmita Kashikar-Zuck; Michael Seid; Emily Verkamp; Esi Morgan Dewitt
Journal:  J Pediatr Psychol       Date:  2012-09-30

4.  Revealing the hidden agency of children in a clinical setting.

Authors:  Christine Dedding; Ria Reis; Bart Wolf; Anita Hardon
Journal:  Health Expect       Date:  2014-03-11       Impact factor: 3.377

5.  '[I would like] a place to be alone, other than the toilet'--Children's perspectives on paediatric hospital care in the Netherlands.

Authors:  Inge Schalkers; Christine W M Dedding; Joske F G Bunders
Journal:  Health Expect       Date:  2014-01-26       Impact factor: 3.377

6.  Preserving the child as a respondent: initiating patient-centered interviews in a US outpatient tertiary care pediatric pain clinic.

Authors:  Ignasi Clemente; John Heritage; Marcia L Meldrum; Jennie C I Tsao; Lonnie K Zeltzer
Journal:  Commun Med       Date:  2012

7.  Children in chronic pain: promoting pediatric patients' symptom accounts in tertiary care.

Authors:  Ignasi Clemente; Seung-Hee Lee; John Heritage
Journal:  Soc Sci Med       Date:  2008-03       Impact factor: 4.634

8.  Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.

Authors:  Vida Jeremic; Karine Sénécal; Pascal Borry; Davit Chokoshvili; Danya F Vears
Journal:  J Bioeth Inq       Date:  2016-09-21       Impact factor: 1.352

9.  Progressivity and participation: children's management of parental assistance in paediatric chronic pain encounters.

Authors:  Ignasi Clemente
Journal:  Sociol Health Illn       Date:  2009-09

10.  Symptom Monitoring in Pediatric Oncology Using Patient-Reported Outcomes: Why, How, and Where Next.

Authors:  Allison Barz Leahy; Chris Feudtner; Ethan Basch
Journal:  Patient       Date:  2018-04       Impact factor: 3.883

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