Literature DB >> 11754047

The ethics of preadoption genetic testing.

L A Jansen1, L F Ross.   

Abstract

Developments in genetic technologies have greatly increased our ability to test for a wide variety of genetic disorders in children. These developments raise important ethical questions about the proper use of genetic testing. One context, in particular, where these questions have arisen is that of preadoption genetic testing. This article examines the current consensus view recently advanced by the American College of Medical Genetics and The American Society of Human Genetics on when pediatric testing is ethically permissible. We argue that the consensus view does not adequately recognize the special ethical responsibilities that arise in the preadoption context. Once these special ethical responsibilities are identified, they provide a compelling argument to revise the current standards to permit more preadoption genetic testing than is currently recommended. Copyright 2001 Wiley-Liss, Inc.

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Year:  2001        PMID: 11754047

Source DB:  PubMed          Journal:  Am J Med Genet        ISSN: 0148-7299


  5 in total

Review 1.  Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.

Authors:  Jeffrey R Botkin; John W Belmont; Jonathan S Berg; Benjamin E Berkman; Yvonne Bombard; Ingrid A Holm; Howard P Levy; Kelly E Ormond; Howard M Saal; Nancy B Spinner; Benjamin S Wilfond; Joseph D McInerney
Journal:  Am J Hum Genet       Date:  2015-07-02       Impact factor: 11.025

2.  Genetic testing in children and young people.

Authors:  Michael Parker
Journal:  Fam Cancer       Date:  2009-07-30       Impact factor: 2.375

3.  Accepting adoption's uncertainty: the limited ethics of pre-adoption genetic testing.

Authors:  Kimberly J Leighton
Journal:  J Bioeth Inq       Date:  2014-06-10       Impact factor: 1.352

4.  Childhood genetic testing for familial cancer: should adoption make a difference?

Authors:  Ainsley J Newson; Samantha J Leonard
Journal:  Fam Cancer       Date:  2009-06-25       Impact factor: 2.375

5.  Can Genomics Remove Uncertainty from Adoption? Social Workers' and Medical Advisors' Accounts of Genetic Testing.

Authors:  Michael Arribas-Ayllon; Katherine Shelton; Angus Clarke
Journal:  Br J Soc Work       Date:  2021-02-24
  5 in total

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