Literature DB >> 11746076

Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit.

H K Butcher1, P A Holkup, M Park, M Maas.   

Abstract

The purpose of this study was to provide an in-depth description of the experience of making the decision to place a family member in a special care unit among a diverse sample of family caregivers. To achieve purposive maximum variation of the sample, the sample of 30 family caregivers was chosen from an original study of 256 family caregivers. The sample was randomly stratified according to ethnicity, gender, and relationship to the care receiver. Three independent researchers used Luborsky's method of thematic analysis to analyze the interviews. After mutual consensus, 1565 themes (descriptive statements) were identified and synthesized into 21 topics. The topics were then synthesized into four patterns describing the decision-making experience: moving toward the unavoidable decision, struggling with the decision, seeking reassurance, and remaining connected. Copyright 2001 John Wiley & Sons, Inc.

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Mesh:

Year:  2001        PMID: 11746076     DOI: 10.1002/nur.10005

Source DB:  PubMed          Journal:  Res Nurs Health        ISSN: 0160-6891            Impact factor:   2.228


  15 in total

1.  Substituted judgment: the limitations of autonomy in surrogate decision making.

Authors:  Alexia M Torke; G Caleb Alexander; John Lantos
Journal:  J Gen Intern Med       Date:  2008-07-10       Impact factor: 5.128

2.  A conceptual model of the role of communication in surrogate decision making for hospitalized adults.

Authors:  Alexia M Torke; Sandra Petronio; Greg A Sachs; Paul R Helft; Christianna Purnell
Journal:  Patient Educ Couns       Date:  2011-09-01

3.  Scope and outcomes of surrogate decision making among hospitalized older adults.

Authors:  Alexia M Torke; Greg A Sachs; Paul R Helft; Kianna Montz; Siu L Hui; James E Slaven; Christopher M Callahan
Journal:  JAMA Intern Med       Date:  2014-03       Impact factor: 21.873

4.  Chronic grief management for dementia caregivers in transition: intervention development and implementation.

Authors:  Olimpia Paun; Carol J Farran
Journal:  J Gerontol Nurs       Date:  2011-11-16       Impact factor: 1.254

5.  Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK.

Authors:  Gill Livingston; Gerard Leavey; Monica Manela; Deborah Livingston; Greta Rait; Elizabeth Sampson; Shilpa Bavishi; Khodayar Shahriyarmolki; Claudia Cooper
Journal:  BMJ       Date:  2010-08-18

6.  Communicating with clinicians: the experiences of surrogate decision-makers for hospitalized older adults.

Authors:  Alexia M Torke; Sandra Petronio; Christianna E Purnell; Greg A Sachs; Paul R Helft; Christopher M Callahan
Journal:  J Am Geriatr Soc       Date:  2012-08-06       Impact factor: 5.562

7.  Activities of daily living in Mexican American caregivers: the key to continuing informal care.

Authors:  Bronwynne C Evans; Michael J Belyea; David W Coon; Ebere Ume
Journal:  J Fam Nurs       Date:  2012-06-26       Impact factor: 3.818

8.  'Familiarity' as a key factor influencing rural family carers' experience of the nursing home placement of an older relative: a qualitative study.

Authors:  Assumpta Ryan; Hugh McKenna
Journal:  BMC Health Serv Res       Date:  2013-07-03       Impact factor: 2.655

Review 9.  A scoping review of the needs of children and other family members after a child's traumatic injury.

Authors:  Samantha Jones; Naomi Davis; Sarah F Tyson
Journal:  Clin Rehabil       Date:  2017-10-30       Impact factor: 3.477

10.  Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study.

Authors:  K S Bond; A F Jorm; B A Kitchener; C M Kelly; K J Chalmers
Journal:  BMC Geriatr       Date:  2016-07-07       Impact factor: 3.921

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