Literature DB >> 11533885

[The testing and validation of the German version of the impact on family scale in families with children with disabilities].

U Ravens-Sieberer1, M Morfeld, R E Stein, D J Jessop, M Bullinger, U Thyen.   

Abstract

Despite increased interest in the wellbeing of families with children with chronic conditions and disabilities, instruments to assess family impact of health conditions are still lacking in German speaking countries. The Impact on Family Scale has been developed in the Anglo-american literature as a self report instrument to assess the consequences of chronic conditions and disability in childhood and adolescence for the family. The present paper describes the translation and psychometric testing of a German version of the Impact on Family scale (Familien-Belastungs[FaBel]-Questionnaire). The questionnaire contains 33 Likert-scaled items to assess the general negative impact of parents, the description of social relationships, the concern for siblings, the financial impact and problems in coping as well as a total score. The FaBel questionnaire was used and tested for psychometric criteria of reliability and validity in a cross-sectional study of 273 families with children with chronic conditions and disabilities. The results of this psychometric testing of the FaBel-Questionnaire show acceptance by responders, acceptable construct validity, good internal consistency and discriminant validity. The psychometric structure of the questionnaire corresponds with psychometric results with another German population of children with chronic conditions. The results suggest the applicability of the instrument to assess family impact of chronic disease and disability in children and adolescents.

Entities:  

Mesh:

Year:  2001        PMID: 11533885     DOI: 10.1055/s-2001-16899

Source DB:  PubMed          Journal:  Psychother Psychosom Med Psychol        ISSN: 0937-2032


  14 in total

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Journal:  Qual Life Res       Date:  2010-12-07       Impact factor: 4.147

2.  Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure.

Authors:  Silvia Wiedebusch; Martin Konrad; Helmut Foppe; Evelyn Reichwald-Klugger; Franz Schaefer; Vera Schreiber; Fritz A Muthny
Journal:  Pediatr Nephrol       Date:  2010-05-12       Impact factor: 3.714

3.  Psychometric properties of a modified version of the Weiss Functional Impairment Rating Scale-Parent Report (WFIRS-P) in a clinical sample of children with aggressive behavior.

Authors:  Teresa Kernder; Manfred Doepfner; Christina Dose; Anja Goertz-Dorten
Journal:  Qual Life Res       Date:  2018-10-01       Impact factor: 4.147

4.  Pilot evaluation of the Frankfurt Social Skills Training for children and adolescents with autism spectrum disorder.

Authors:  Evelyn Herbrecht; Fritz Poustka; Sabine Birnkammer; Eftichia Duketis; Sabine Schlitt; Gabriele Schmötzer; Sven Bölte
Journal:  Eur Child Adolesc Psychiatry       Date:  2009-01-22       Impact factor: 4.785

5.  Anxiety, depression, and quality of life in parents of children with congenital hyperinsulinism.

Authors:  Marcia Roeper; Henrike Hoermann; Roschan Salimi Dafsari; Felix Koestner; Ertan Mayatepek; Sebastian Kummer; Christina Reinauer; Thomas Meissner
Journal:  Eur J Pediatr       Date:  2022-05-04       Impact factor: 3.860

6.  Turkish version of impact on family scale: a study of reliability and validity.

Authors:  Nilgun Bek; I Engin Simsek; Suat Erel; Yavuz Yakut; Fatma Uygur
Journal:  Health Qual Life Outcomes       Date:  2009-01-28       Impact factor: 3.186

7.  Cross-cultural French adaptation and validation of the Impact On Family Scale (IOFS).

Authors:  Raphaël Boudas; Jérémie Jégu; Bruno Grollemund; Elvire Quentel; Anne Danion-Grilliat; Michel Velten
Journal:  Health Qual Life Outcomes       Date:  2013-04-23       Impact factor: 3.186

8.  Quality of life among parents of children with phenylketonuria (PKU).

Authors:  Astrid Fidika; Christel Salewski; Lutz Goldbeck
Journal:  Health Qual Life Outcomes       Date:  2013-03-28       Impact factor: 3.186

9.  Propionic acidemia: clinical course and outcome in 55 pediatric and adolescent patients.

Authors:  Sarah C Grünert; Stephanie Müllerleile; Linda De Silva; Michael Barth; Melanie Walter; Kerstin Walter; Thomas Meissner; Martin Lindner; Regina Ensenauer; René Santer; Olaf A Bodamer; Matthias R Baumgartner; Michaela Brunner-Krainz; Daniela Karall; Claudia Haase; Ina Knerr; Thorsten Marquardt; Julia B Hennermann; Robert Steinfeld; Skadi Beblo; Hans-Georg Koch; Vassiliki Konstantopoulou; Sabine Scholl-Bürgi; Agnes van Teeffelen-Heithoff; Terttu Suormala; Wolfgang Sperl; Jan P Kraus; Andrea Superti-Furga; Karl Otfried Schwab; Jörn Oliver Sass
Journal:  Orphanet J Rare Dis       Date:  2013-01-10       Impact factor: 4.123

Review 10.  The use of health-related quality of life (HRQOL) in children and adolescents as an outcome criterion to evaluate family oriented support for young carers in Germany: an integrative review of the literature.

Authors:  Jörg Grosse Schlarmann; Sabine Metzing-Blau; Wilfried Schnepp
Journal:  BMC Public Health       Date:  2008-12-17       Impact factor: 3.295

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