T Schäfer1, A Staudt, J Ring. 1. Klinik und Poliklinik für Dermatologie und Allergologie-am Biederstein-der Technischen Universität München, Biedersteiner Strasse 29, 80802 München. tschafer@lrz.tum.de
Abstract
BACKGROUND AND OBJECTIVE: Performance and psychometric testing of the German Instrument for the Assessment of Quality of Life in Skin Diseases (DIELH). PATIENTS/ METHODS: The instrument consisting of 36 questions (maximum skore 180, 7 domains) was used in 836 outpatients and quality assessments (validity, reliability, responsiveness) were performed. RESULTS: The total skore had a mean of 54 pts. (STD 31, range 0-157) and was normally distributed. Women reported a higher impact on quality of life (median 56 vs. 49, p < 0.001). In terms of discriminant validity significant differences between diagnostic groups were observed with high scorings for patients with eczema, psoriasis, urticaria, and acne (p < 0.001). Tests for internal consistency (Cronbach's alpha 0.71-0.92) and reliability (r = 0.73-0.86) revealed valid results. The DIELH correlated well with the DLQI (r = 0.78, p < 0.001) and moderately with 3 domains of the SF 36 (r = 0.25-0.30, p < 0.01). Changes in the quality of life after 4 weeks were consistent with the corresponding changes of the skin condition and partially significant. CONCLUSIONS: In the use within a large patient sample the DIELH proved to be feasible, valid, reliable, and responsive.
BACKGROUND AND OBJECTIVE: Performance and psychometric testing of the German Instrument for the Assessment of Quality of Life in Skin Diseases (DIELH). PATIENTS/ METHODS: The instrument consisting of 36 questions (maximum skore 180, 7 domains) was used in 836 outpatients and quality assessments (validity, reliability, responsiveness) were performed. RESULTS: The total skore had a mean of 54 pts. (STD 31, range 0-157) and was normally distributed. Women reported a higher impact on quality of life (median 56 vs. 49, p < 0.001). In terms of discriminant validity significant differences between diagnostic groups were observed with high scorings for patients with eczema, psoriasis, urticaria, and acne (p < 0.001). Tests for internal consistency (Cronbach's alpha 0.71-0.92) and reliability (r = 0.73-0.86) revealed valid results. The DIELH correlated well with the DLQI (r = 0.78, p < 0.001) and moderately with 3 domains of the SF 36 (r = 0.25-0.30, p < 0.01). Changes in the quality of life after 4 weeks were consistent with the corresponding changes of the skin condition and partially significant. CONCLUSIONS: In the use within a large patient sample the DIELH proved to be feasible, valid, reliable, and responsive.
Authors: Alexandre Chan; Michael C Cameron; Benjamin Garden; Christine B Boers-Doets; Katja Schindler; Joel B Epstein; Jennifer Choi; Laura Beamer; Eric Roeland; Elvio G Russi; René-Jean Bensadoun; Yi Ling Teo; Raymond J Chan; Vivianne Shih; Jane Bryce; Judith Raber-Durlacher; Peter Arne Gerber; César O Freytes; Bernardo Rapoport; Nicole LeBoeuf; Vincent Sibaud; Mario E Lacouture Journal: Support Care Cancer Date: 2015-01-07 Impact factor: 3.603
Authors: Susannah Mc George; Sanja Karanovic; David A Harrison; Anjna Rani; Andrew J Birnie; Fiona J Bath-Hextall; Jane C Ravenscroft; Hywel C Williams Journal: Cochrane Database Syst Rev Date: 2019-10-29