Literature DB >> 11331906

Protecting genetic privacy.

P A Roche, G J Annas.   

Abstract

This article outlines the arguments for and against new rules to protect genetic privacy. We explain why genetic information is different to other sensitive medical information, why researchers and biotechnology companies have opposed new rules to protect genetic privacy (and favour anti-discrimination laws instead), and discuss what can be done to protect privacy in relation to genetic-sequence information and to DNA samples themselves.

Keywords:  Genetics and Reproduction; Legal Approach

Mesh：

Year:  2001        PMID： 11331906     DOI： 10.1038/35072029

Source DB:  PubMed          Journal:  Nat Rev Genet        ISSN： 1471-0056            Impact factor:   53.242


  8 in total

1.  Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

Authors:  George Gaskell; Herbert Gottweis; Johannes Starkbaum; Monica M Gerber; Jacqueline Broerse; Ursula Gottweis; Abbi Hobbs; Ilpo Helén; Maria Paschou; Karoliina Snell; Alexandra Soulier
Journal:  Eur J Hum Genet       Date:  2012-06-06       Impact factor: 4.246

2.  Reconceptualizing harms and benefits in the genomic age.

Authors:  Anya E R Prince; Benjamin E Berkman
Journal:  Per Med       Date:  2018-09-27       Impact factor: 2.512

3.  Comparing knowledge of beta-thalassemia in samples of Italians, Italian-Americans, and non-Italian-Americans.

Authors:  Christina Armeli; Steven J Robbins; Deborah Eunpu
Journal:  J Genet Couns       Date:  2005-10       Impact factor: 2.537

Review 4.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

Review 5.  Naked bodies, naked genomes: the special (but not exceptional) nature of genomic information.

Authors:  Daniel P Sulmasy
Journal:  Genet Med       Date:  2014-09-18       Impact factor: 8.822

6.  Efficient privacy-preserving string search and an application in genomics.

Authors:  Kana Shimizu; Koji Nuida; Gunnar Rätsch
Journal:  Bioinformatics       Date:  2016-03-02       Impact factor: 6.937

7.  Enabling genomic-phenomic association discovery without sacrificing anonymity.

Authors:  Raymond D Heatherly; Grigorios Loukides; Joshua C Denny; Jonathan L Haines; Dan M Roden; Bradley A Malin
Journal:  PLoS One       Date:  2013-02-06       Impact factor: 3.240

8.  Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.

Authors:  Anna Middleton; Richard Milne; Heidi Howard; Emilia Niemiec; Lauren Robarts; Christine Critchley; Dianne Nicol; Barbara Prainsack; Jerome Atutornu; Danya F Vears; James Smith; Claire Steed; Paul Bevan; Erick R Scott; Jason Bobe; Peter Goodhand; Erika Kleiderman; Adrian Thorogood; Katherine I Morley
Journal:  Eur J Hum Genet       Date:  2019-11-29       Impact factor: 4.246
  8 in total

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