Literature DB >> 11301128

The Icelandic genome debate.

G Pálsson1, P Rabinow.   

Abstract

Three of the central issues in contemporary debates about the commodification of the human body are those of property, ownership, and access. This article uses the case of the central medical database on Icelanders to discuss contesting claims about the ownership of the human genome, with respect to the rapid development of biotechnology, human genome projects and DNA collections. We emphasize the contrast between commercial and communitarian perspectives and to illustrate our argument we explore debates about the Icelandic database. These debates have been intense, focusing on a range of issues, including ethics, academic freedom, public health and, last but not least, the control and ownership of medical records, genetic information and genealogical data. This article should be seen primarily as an anthropological commentary on ongoing developments.

Entities:  

Mesh:

Substances:

Year:  2001        PMID: 11301128     DOI: 10.1016/s0167-7799(01)01607-9

Source DB:  PubMed          Journal:  Trends Biotechnol        ISSN: 0167-7799            Impact factor:   19.536


  3 in total

1.  Ethical issues in human genomics research in developing countries.

Authors:  Jantina de Vries; Susan J Bull; Ogobara Doumbo; Muntaser Ibrahim; Odile Mercereau-Puijalon; Dominic Kwiatkowski; Michael Parker
Journal:  BMC Med Ethics       Date:  2011-03-18       Impact factor: 2.652

2.  Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu.

Authors:  Nchangwi Syntia Munung; Jantina de Vries; Bridget Pratt
Journal:  Med Health Care Philos       Date:  2021-04-02

3.  A critique of the regulation of data science in healthcare research in the European Union.

Authors:  John M M Rumbold; Barbara K Pierscionek
Journal:  BMC Med Ethics       Date:  2017-04-08       Impact factor: 2.652

  3 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.