Literature DB >> 11253055

Beyond consent: ethical and social issues in genetic testing.

M M Burgess1.   

Abstract

Informed consent is a vital ethical doctrine in clinical medicine and, through genetic counselling, is being applied to genetic testing. But genetic testing raises issues that transcend the traditional concept of informed consent. Genetic tests are adopted without demonstrable clinical benefit, and the consequences of testing can reach beyond the individual to their families and communities. Understanding the social and cultural context of genetic testing will lead to more informed discussion and debate on these issues.

Keywords:  Genetics and Reproduction

Mesh:

Year:  2001        PMID: 11253055     DOI: 10.1038/35052579

Source DB:  PubMed          Journal:  Nat Rev Genet        ISSN: 1471-0056            Impact factor:   53.242


  9 in total

1.  Democracy and genetic privacy: the value of bodily integrity.

Authors:  Ludvig Beckman
Journal:  Med Health Care Philos       Date:  2005

2.  Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.

Authors:  Josephine Johnston; John D Lantos; Aaron Goldenberg; Flavia Chen; Erik Parens; Barbara A Koenig
Journal:  Hastings Cent Rep       Date:  2018-07       Impact factor: 2.683

Review 3.  Using pharmacogenetics and pharmacogenomics in the treatment of psychiatric disorders: some ethical and economic considerations.

Authors:  Katherine I Morley; Wayne D Hall
Journal:  J Mol Med (Berl)       Date:  2003-11-04       Impact factor: 4.599

4.  Improving Trend of Adhering to Ethical Measures in Iranian Research in Human Genetics: A Survey from 2005 to 2009; and the Road Ahead.

Authors:  Seyed Hasan Saadat; Khodabakhsh Ahmadi; Fakhruddin Feyzi; Mostafa Ghanei
Journal:  Iran J Public Health       Date:  2013-10       Impact factor: 1.429

5.  Development of a communication protocol for telephone disclosure of genetic test results for cancer predisposition.

Authors:  Linda J Patrick-Miller; Brian L Egleston; Dominique Fetzer; Andrea Forman; Lisa Bealin; Christina Rybak; Candace Peterson; Melanie Corbman; Julio Albarracin; Evelyn Stevens; Mary B Daly; Angela R Bradbury
Journal:  JMIR Res Protoc       Date:  2014-10-29

6.  Health Policy and Privacy Challenges Associated With Digital Technology.

Authors:  David Grande; Xochitl Luna Marti; Rachel Feuerstein-Simon; Raina M Merchant; David A Asch; Ashley Lewson; Carolyn C Cannuscio
Journal:  JAMA Netw Open       Date:  2020-07-01

Review 7.  Factors Associated With Willingness to Share Health Information: Rapid Review.

Authors:  Turin Tc; Iffat Naeem; Hude Quan; Shaminder Singh; Nashit Chowdhury; Mohammad Chowdhury; Vineet Saini
Journal:  JMIR Hum Factors       Date:  2022-02-09

8.  Are good intentions good enough? Informed consent without trained interpreters.

Authors:  Linda M Hunt; Katherine B de Voogd
Journal:  J Gen Intern Med       Date:  2007-03-02       Impact factor: 5.128

9.  Research ethics recommendations for whole-genome research: consensus statement.

Authors:  Timothy Caulfield; Amy L McGuire; Mildred Cho; Janet A Buchanan; Michael M Burgess; Ursula Danilczyk; Christina M Diaz; Kelly Fryer-Edwards; Shane K Green; Marc A Hodosh; Eric T Juengst; Jane Kaye; Laurence Kedes; Bartha Maria Knoppers; Trudo Lemmens; Eric M Meslin; Juli Murphy; Robert L Nussbaum; Margaret Otlowski; Daryl Pullman; Peter N Ray; Jeremy Sugarman; Michael Timmons
Journal:  PLoS Biol       Date:  2008-03-25       Impact factor: 8.029

  9 in total

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