Literature DB >> 11204677

Cleft lip and palate care in the United Kingdom--the Clinical Standards Advisory Group (CSAG) Study. Part 1: background and methodology.

J R Sandy1, A C Williams, D Bearn, S Mildinhall, T Murphy, D Sell, J J Murray, W C Shaw.   

Abstract

OBJECTIVE: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study.
DESIGN: Descriptive overview to introduce this series of papers.
SETTING: Fifty National Health Service cleft teams. PATIENTS/PARTICIPANTS: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. MAIN OUTCOME MEASURES: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction.
CONCLUSIONS: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.

Entities:  

Mesh:

Year:  2001        PMID: 11204677     DOI: 10.1597/1545-1569_2001_038_0020_clapci_2.0.co_2

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  9 in total

1.  A status report on management of cleft lip and palate in India.

Authors:  A Gopalakrishna; Karoon Agrawal
Journal:  Indian J Plast Surg       Date:  2010-01

2.  Facilitators and Barriers to Implementing Standardized Outcome Measurement for Children With Cleft Lip and Palate.

Authors:  Erica M Weidler; Maria T Britto; Thomas J Sitzman
Journal:  Cleft Palate Craniofac J       Date:  2020-07-14

3.  The effect of various factors on the dental arch relationship in non-syndromic unilateral cleft lip and palate children assessed by new approach: a retrospective study.

Authors:  Sanjida Haque; Mohammad Khursheed Alam; Mohd Fadhli Khamis
Journal:  BMC Pediatr       Date:  2017-05-06       Impact factor: 2.125

4.  Centre-level variation of treatment and outcome in 5-year-old children with non-syndromic unilateral cleft lip and palate: The Cleft Care UK study. Part 1: Methodology and results for dento-facial outcomes.

Authors:  A K Wills; O Mahmoud; A Hall; D Sell; J Smallridge; L Southby; S Toms; A Waylen; Y Wren; A R Ness; J R Sandy
Journal:  Orthod Craniofac Res       Date:  2017-06       Impact factor: 1.826

5.  Collection of Bilateral Cleft Lip and Palate Standard Set Variables: Establishing a Baseline.

Authors:  Isabelle Citron; Ingrid Ganske; Benjamin B Massenburg; Michael Doyle; John G Meara; Carolyn R Rogers-Vizena
Journal:  Plast Reconstr Surg Glob Open       Date:  2018-08-16

6.  Centralization of cleft care in the UK. Part 6: a tale of two studies.

Authors:  A R Ness; A K Wills; A Waylen; R Al-Ghatam; T E M Jones; R Preston; A J Ireland; M Persson; J Smallridge; A J Hall; D Sell; J R Sandy
Journal:  Orthod Craniofac Res       Date:  2015-11       Impact factor: 1.826

7.  A cross-sectional survey of 5-year-old children with non-syndromic unilateral cleft lip and palate: the Cleft Care UK study. Part 1: background and methodology.

Authors:  M Persson; J R Sandy; A Waylen; A K Wills; R Al-Ghatam; A J Ireland; A J Hall; W Hollingworth; T Jones; T J Peters; R Preston; D Sell; J Smallridge; H Worthington; A R Ness
Journal:  Orthod Craniofac Res       Date:  2015-11       Impact factor: 1.826

8.  The Cleft Care UK study. Part 4: perceptual speech outcomes.

Authors:  D Sell; S Mildinhall; L Albery; A K Wills; J R Sandy; A R Ness
Journal:  Orthod Craniofac Res       Date:  2015-11       Impact factor: 1.826

9.  Educational Attainment of Children Born with Unilateral Cleft Lip and Palate in the United Kingdom.

Authors:  Sukhraj S Grewal; Sirisha Ponduri; Sam D Leary; Yvonne Wren; John M D Thompson; Anthony J Ireland; Andy R Ness; Jonathan R Sandy
Journal:  Cleft Palate Craniofac J       Date:  2020-09-29
  9 in total

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