Literature DB >> 11196523

Surfing the Net--information on the World Wide Web for persons with arthritis: patient empowerment or patient deceit?

M E Suarez-Almazor1, C J Kendall, M Dorgan.   

Abstract

OBJECTIVE: In the past few years access to the Internet has become readily available. Patients are increasingly seeking and obtaining health information through the Internet, most often the World Wide Web (WWW). We assessed the content, authorship, and scope of the information available on WWW in relation to rheumatoid arthritis.
METHODS: In an attempt to replicate use by the average person, a broad search of the Internet was conducted for the phrase "rheumatoid arthritis" using WebCrawler, a commonly used search engine. All the "hits" were critically assessed after visiting and collecting information from the respective Web sites in relation to relevance, scope, authorship, type of publication, and financial objectives.
RESULTS: The search returned 537 hits. We evaluated 531-2 did not exist, 2 could not be contacted, one was not in English, and one required a membership to access. The 531 hits originated from 388 Web sites. Only 198 (51%) were considered to be relevant and 7 (2%) were of doubtful relevance. Thirty-four (17%) were posted by an individual, 57 (28%) by a nonprofit organization, 104 (51%) by a profit industry, and 10 (5%) by universities. Ninety-one (44%) promoted alternative therapies, the most common including cetyl-myristoleate, colloidal minerals, Pycnogenol, shark cartilage, and Tahitian Noni. Of the 107 sites with financial interests, 76 (71%) promoted alternative medicine. The first 100 hits only identified about a third of the nonprofit organizations or university owned Web pages.
CONCLUSION: Many sites easily accessed by consumers appear to be profit based companies advertising an alternative product claimed to be effective for many conditions. These findings emphasize the need for critical evaluation of Web site contents.

Entities:  

Mesh:

Year:  2001        PMID: 11196523

Source DB:  PubMed          Journal:  J Rheumatol        ISSN: 0315-162X            Impact factor:   4.666


  13 in total

Review 1.  Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination.

Authors:  Anna Gagliardi; Alejandro R Jadad
Journal:  BMJ       Date:  2002-03-09

2.  [Internet presence of internist clinics in Germany. Results of a country-wide survey of 400 listed clinics].

Authors:  F van Buuren; D Kämpfe; J B Dahm
Journal:  Internist (Berl)       Date:  2003-11       Impact factor: 0.743

Review 3.  Identifying Complementary and Alternative Medicine Usage Information from Internet Resources. A Systematic Review.

Authors:  Vivekanand Sharma; John H Holmes; Indra N Sarkar
Journal:  Methods Inf Med       Date:  2016-06-28       Impact factor: 2.176

4.  Fifteen-year trend in information on the World Wide Web for patients with rheumatoid arthritis: evolving, but opportunities for improvement remain.

Authors:  Jose Dionisio Castillo-Ortiz; Jose de Jesus Valdivia-Nuno; Andrea Ramirez-Gomez; Heber Garagarza-Mariscal; Carlos Gallegos-Rios; Gabriel Flores-Hernandez; Luis Hernandez-Sanchez; Victor Brambila-Barba; Jose Juan Castaneda-Sanchez; Zalathiel Barajas-Ochoa; Angel Suarez-Rico; Jorge Manuel Sanchez-Gonzalez; Cesar Ramos-Remus
Journal:  Rheumatol Int       Date:  2016-06-13       Impact factor: 2.631

5.  What arthritis pain practitioners and patients want in an online self-management programme.

Authors:  Kimberlee J Trudeau; Jessica L Ainscough; Lynette A Pujol; Sadaf Charity
Journal:  Musculoskeletal Care       Date:  2010-12

6.  Disease related use of the internet in chronically ill adults: current and expected use.

Authors:  W G J M van Lankveld; A M Derks; F H J van den Hoogen
Journal:  Ann Rheum Dis       Date:  2005-05-26       Impact factor: 19.103

Review 7.  A review of computer-based alcohol problem services designed for the general public.

Authors:  Michael L Vernon
Journal:  J Subst Abuse Treat       Date:  2009-12-16

8.  Experiences and attitudes of Dutch rheumatologists and oncologists with regard to their patients' health-related Internet use.

Authors:  Cornelia F van Uden-Kraan; Constance H C Drossaert; Erik Taal; Wim M Smit; Erwin R Seydel; Mart A F J van de Laar
Journal:  Clin Rheumatol       Date:  2010-04-11       Impact factor: 2.980

9.  Thoughts and perceptions of ankylosing spondylitis patients with regard to TNF inhibitors.

Authors:  Fatma Ilknur Cinar; Muhammet Cinar; Sedat Yilmaz; Ismail Simsek; Hakan Erdem; Salih Pay
Journal:  Rheumatol Int       Date:  2013-12-29       Impact factor: 2.631

10.  Increased Education is Associated with Decreased Compliance in an Urban Multi-Ethnic Lupus Cohort.

Authors:  Rachel Gross; Jennifer Graybill; Dawn Wahezi; Nicole C Jordan; Chaim Putterman; Irene Blanco
Journal:  J Clin Cell Immunol       Date:  2014-06
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.