Literature DB >> 11176922

MSJAMA: the Internet and medicine: building a community for patients with rare diseases.

M Patsos.   

Abstract

Entities:  

Mesh：

Year:  2001        PMID： 11176922

Source DB:  PubMed          Journal:  JAMA        ISSN： 0098-7484            Impact factor:   56.272


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  6 in total

1.  Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study.

Authors:  Maya Doyle
Journal:  Patient       Date:  2015-02       Impact factor: 3.883

2.  Public health awareness of autoimmune diseases after the death of a celebrity.

Authors:  Nicola Luigi Bragazzi; Abdulla Watad; Francesco Brigo; Mohammad Adawi; Howard Amital; Yehuda Shoenfeld
Journal:  Clin Rheumatol       Date:  2016-12-20       Impact factor: 3.650

3.  The End-of-Life Experience of Patients With Rare Cancers and Their Caregivers.

Authors:  Elizabeth Trice Loggers; Holly G Prigerson
Journal:  Rare Tumors       Date:  2014-03-24

4.  Differences in health care experiences between rare cancer and common cancer patients: results from a national cross-sectional survey.

Authors:  Eline de Heus; Vivian Engelen; Irene Dingemans; Carol Richel; Marga Schrieks; Jan Maarten van der Zwan; Marc G Besselink; Mark I van Berge Henegouwen; Carla M L van Herpen; Saskia F A Duijts
Journal:  Orphanet J Rare Dis       Date:  2021-06-01       Impact factor: 4.123

5.  What are patients seeking when they turn to the Internet? Qualitative content analysis of questions asked by visitors to an orthopaedics Web site.

Authors:  Kristen S Shuyler; Kristin M Knight
Journal:  J Med Internet Res       Date:  2003-10-10       Impact factor: 5.428

6.  Portal for Families Overcoming Neurodevelopmental Disorders (PFOND): Implementation of a Software Framework for Facilitated Community Website Creation by Nontechnical Volunteers.

Authors:  Xin Cynthia Ye; Isaiah Ng; Puya Seid-Karbasi; Tuhina Imam; Cheryl E Lee; Shirley Yu Chen; Adam Herman; Balraj Sharma; Gurinder Johal; Bobby Gu; Wyeth W Wasserman
Journal:  JMIR Res Protoc       Date:  2013-08-06
  6 in total

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