Literature DB >> 11095230

Hearing the voices of children with chronic illness.

S A Sartain1, C L Clarke, R Heyman.   

Abstract

This qualitative study has aimed to explore children's, parents' and health professionals' experience of childhood chronic illness. Seven families and their professional carers participated in semistrucured interviews. The children's interviews were augmented with a 'drawing' technique. A grounded theory approach facilitated data collection and analysis. This paper debates the perceived passivity of the voice of children in health care and research and illustrates data collection methods that seek to give children and other disadvantaged groups a voice. The children who participated in this study are described as competent interpreters of their world.

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Year:  2000        PMID: 11095230

Source DB:  PubMed          Journal:  J Adv Nurs        ISSN: 0309-2402            Impact factor:   3.187


  12 in total

1.  Integration versus disintegration: a grounded theory study of adolescent and young adult development in the context of perinatally-acquired HIV infection.

Authors:  Joseph P De Santis; Ana Garcia; Aida Chaparro; Oscar Beltran
Journal:  J Pediatr Nurs       Date:  2014-01-13       Impact factor: 2.145

2.  The experience of children and families with lymphoedema--a journey within a journey.

Authors:  Christine J Moffatt; Susie G Murray
Journal:  Int Wound J       Date:  2010-02       Impact factor: 3.315

3.  Low exercise among children with asthma: a culture of over protection? A qualitative study of experiences and beliefs.

Authors:  Brian Williams; Gaylor Hoskins; Jannette Pow; Ron Neville; Somnath Mukhopadhyay; Joanne Coyle
Journal:  Br J Gen Pract       Date:  2010-08       Impact factor: 5.386

4.  "I can't be what I want to be": children's narratives of chronic pain experiences and treatment outcomes.

Authors:  Marcia L Meldrum; Jennie C-I Tsao; Lonnie K Zeltzer
Journal:  Pain Med       Date:  2009-07-06       Impact factor: 3.750

5.  Health-related quality of life of children and adolescents with CKD stages 4-5 and their caregivers.

Authors:  Marcos Lopes; Alexandre Ferraro; Vera H Koch
Journal:  Pediatr Nephrol       Date:  2014-02-28       Impact factor: 3.714

6.  Sensory experiences of children with autism spectrum disorder: in their own words.

Authors:  Anne V Kirby; Virginia A Dickie; Grace T Baranek
Journal:  Autism       Date:  2014-02-11

7.  Exciting but exhausting: experiences with participatory research with chronically ill adolescents.

Authors:  Anneloes van Staa; Susan Jedeloo; Jos M Latour; Margo J Trappenburg
Journal:  Health Expect       Date:  2009-08-13       Impact factor: 3.377

8.  Meta-ethnography of experiences of early discharge, with a focus on paediatric febrile neutropenia.

Authors:  Jessica E Morgan; Jemma Cleminson; Lesley A Stewart; Robert S Phillips; Karl Atkin
Journal:  Support Care Cancer       Date:  2017-12-29       Impact factor: 3.603

9.  Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives.

Authors:  Katherine Rowe
Journal:  Acta Paediatr       Date:  2019-12-18       Impact factor: 2.299

10.  Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.

Authors:  Kate Oulton; Jo Wray; Lucinda Carr; Angela Hassiotis; Carey Jewitt; Sam Kerry; Irene Tuffrey-Wijne; Faith Gibson
Journal:  BMJ Open       Date:  2016-12-09       Impact factor: 2.692

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