Literature DB >> 11066508

The Genetic Privacy Act: an analysis of privacy and research concerns.

E S Troy1.   

Abstract

Author argues that the Genetic Privacy Act fails to protect nucleic acid-based information as it relates to individual privacy, yet overburdens medical and scientific research with vague consent standards.

Keywords:  Genetic Privacy Act; Genetics and Reproduction; Legal Approach; Professional Patient Relationship

Mesh：

Year:  1997        PMID： 11066508     DOI： 10.1111/j.1748-720x.1997.tb01408.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


  3 in total

Review 1.  Ethical reflections on pharmacogenetics and DNA banking in a cohort of HIV-infected patients.

Authors:  Sandrine de Montgolfier; Grégoire Moutel; Nathalie Duchange; Ioannis Theodorou; Christian Hervé; Catherine Leport
Journal:  Pharmacogenetics       Date:  2002-12

Review 2.  Can you keep a (genetic) secret? The genetic privacy movement.

Authors:  Margaret Everett
Journal:  J Genet Couns       Date:  2004-08       Impact factor: 2.537

3.  Genetics Evaluation Guidelines for the Etiologic Diagnosis of Congenital Hearing Loss. Genetic Evaluation of Congenital Hearing Loss Expert Panel. ACMG statement.

Authors: 
Journal:  Genet Med       Date:  2002 May-Jun       Impact factor: 8.822
  3 in total

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