Literature DB >> 11055047

Parental duties and untreatable genetic conditions.

H Clarkeburn1.   

Abstract

This paper considers parental duties of beneficence and non-maleficence to use prenatal genetic testing for non-treatable conditions. It is proposed that this can be a duty only if the testing is essential to protect the interests of the child i.e. only if there is a risk of the child being born to a life worse than non-existence. It is argued here that non-existence can be rationally preferred to a severely impaired life. Uncontrollable pain and a lack of any opportunity to develop a continuous self are considered to be sufficient criteria for such preference. When parents are at risk of having a child whose life would be worse than non-existence, the parents have a duty to use prenatal testing and a duty to terminate an affected pregnancy. Further, such duty does not apply to any conditions where the resulting life can be considered better than non-existence.

Entities:  

Keywords:  Analytical Approach; Genetics and Reproduction

Mesh:

Year:  2000        PMID: 11055047      PMCID: PMC1733300          DOI: 10.1136/jme.26.5.400

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  1 in total

1.  Wrongful life and the counterfactual element in harming.

Authors:  Joel Feinberg
Journal:  Soc Philos Policy       Date:  1986
  1 in total
  5 in total

1.  Impacts of variants of uncertain significance on parental perceptions of children after prenatal chromosome microarray testing.

Authors:  Preeya Desai; Hannah Haber; Jessica Bulafka; Amita Russell; Rebecca Clifton; Julia Zachary; Seonjoo Lee; Tianshu Feng; Ronald Wapner; Catherine Monk; Wendy K Chung
Journal:  Prenat Diagn       Date:  2018-07-24       Impact factor: 3.050

2.  Ethical dilemmas in testing for late onset conditions: reactions to testing and perceived impact on other family members.

Authors:  Elizabeth Chapman
Journal:  J Genet Couns       Date:  2002-10       Impact factor: 2.537

3.  Swedish healthcare providers' perceptions of preconception expanded carrier screening (ECS)-a qualitative study.

Authors:  A Matar; U Kihlbom; A T Höglund
Journal:  J Community Genet       Date:  2016-05-25

4.  Qualifying choice: ethical reflection on the scope of prenatal screening.

Authors:  Greg Stapleton
Journal:  Med Health Care Philos       Date:  2017-06

5.  The ethics of preconception expanded carrier screening in patients seeking assisted reproduction.

Authors:  Guido de Wert; Sanne van der Hout; Mariëtte Goddijn; Rita Vassena; Lucy Frith; Nathalie Vermeulen; Ursula Eichenlaub-Ritter
Journal:  Hum Reprod Open       Date:  2021-02-12
  5 in total

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