Literature DB >> 10913453

Releasing information to families of persons with severe mental illness: a survey of NAMI members.

T B Marshall1, P Solomon.   

Abstract

OBJECTIVE: Guidelines for the treatment of severe mental illness recommend that providers share information with families and involve them in treatment. However, research indicates that consumer-provider-family collaboration is not part of routine clinical practice. This study examined the process of releasing information to families and the types of information they receive.
METHODS: Self-administered surveys were completed by 219 family and consumer members of the National Alliance for the Mentally Ill. The surveys gathered information about their experiences with providers' releasing information. Consumers' attitudes toward collaboration and family members' satisfaction with providers were also measured. Regression analyses examined the relationship between consumers' attitudes toward family involvement and whether providers discussed family involvement or the release of information with consumers. Further analyses examined the relationship between family satisfaction and release of information.
RESULTS: The majority of family respondents (72 percent) reported that they received some specific information about their relative's mental illness. Most families received information about diagnosis and medications, but few received information about the treatment plan. Few consumers reported that their permission was requested to release information to their families. Consumers' attitudes toward their family and toward family involvement were significantly associated with whether they were encouraged by their provider to involve a family member in their treatment. No significant relationship was found between consumers' attitudes and whether their provider discussed the release of information. Family members' satisfaction was positively related to whether they received information from providers.
CONCLUSIONS: The findings suggest that although some information is shared with families, collaboration is not currently part of routine clinical practice.

Entities:  

Keywords:  Empirical Approach; Mental Health Therapies; Professional Patient Relationship

Mesh:

Year:  2000        PMID: 10913453     DOI: 10.1176/appi.ps.51.8.1006

Source DB:  PubMed          Journal:  Psychiatr Serv        ISSN: 1075-2730            Impact factor:   3.084


  9 in total

1.  Predictors of caregiver satisfaction with mental health services.

Authors:  Michel Perreault; Michel Rousseau; Hélène Provencher; Sarah Roberts; Diana Milton
Journal:  Community Ment Health J       Date:  2011-05-11

2.  Family Inclusion in Mental Health Service Planning and Delivery: Consumers' Perspectives.

Authors:  Lauren Wonders; Anne Honey; Nicola Hancock
Journal:  Community Ment Health J       Date:  2018-07-07

3.  The role of relatives in discharge planning from psychiatric hospitals: the perspective of patients and their relatives.

Authors:  Michel Perreault; Hélène Tardif; Hélène Provencher; Geneviève Paquin; Julie Desmarais; Nicole Pawliuk
Journal:  Psychiatr Q       Date:  2005

4.  Held to ransom: Parents of self-harming adults describe their lived experience of professional care and caregivers.

Authors:  Britt-Marie Lindgren; Sture Aström; Ulla Hällgren Graneheim
Journal:  Int J Qual Stud Health Well-being       Date:  2010-09-24

5.  Attitudes and perceived barriers to working with families of persons with severe mental illness: mental health professionals' perspectives.

Authors:  Hea-Won Kim; Michelle P Salyers
Journal:  Community Ment Health J       Date:  2008-04-25

6.  Caregiving for Relatives with Psychiatric Disorders vs. Co-Occurring Psychiatric and Substance Use Disorders.

Authors:  Travis Labrum
Journal:  Psychiatr Q       Date:  2018-09

7.  Sociocultural Factors Associated with Caregiver-Psychiatrist Relationship in Taiwan.

Authors:  Hui-Ching Wu; Fang-Pei Chen
Journal:  Psychiatry Investig       Date:  2016-05-18       Impact factor: 2.505

Review 8.  Worlds apart? A scoping review addressing different stakeholder perspectives on barriers to family involvement in the care for persons with severe mental illness.

Authors:  Elleke Landeweer; Bert Molewijk; Marit Helene Hem; Reidar Pedersen
Journal:  BMC Health Serv Res       Date:  2017-05-15       Impact factor: 2.655

Review 9.  Systematic synthesis of barriers and facilitators to service user-led care planning.

Authors:  Penny Bee; Owen Price; John Baker; Karina Lovell
Journal:  Br J Psychiatry       Date:  2015-08       Impact factor: 9.319

  9 in total

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