Literature DB >> 10860205

Public deliberation and private choice in genetics and reproduction.

M Parker1.   

Abstract

The development of human genetics raises a wide range of important ethical questions for us all. The interpersonal dimension of genetic information in particular means that genetics also poses important challenges to the idea of patient-centredness and autonomy in medicine. How ought practical ethical decisions about the new genetics be made given that we appear, moreover, no longer to be able to appeal to unquestioned traditions and widely shared communitarian values? This paper argues that any coherent ethical approach to these questions must be able both to uphold the moral status of the individual and at the same time recognise the communitarian, interpersonal dimensions both of the world in which we live and of personal autonomy itself. The paper then goes on to propose an approach to the resolution of the ethical questions raised by the use of the new genetics in reproductive choice through the development of a coherent and principled process of public reason and justification oriented towards the support and development of personal autonomy.

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh:

Year:  2000        PMID: 10860205      PMCID: PMC1733227          DOI: 10.1136/jme.26.3.160

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  8 in total

1.  Shared decision-making, gender and new technologies.

Authors:  Kristin Zeiler
Journal:  Med Health Care Philos       Date:  2007-01-03

Review 2.  Genetics and the interpersonal elaboration of ethics.

Authors:  M Parker
Journal:  Theor Med Bioeth       Date:  2001-09

3.  The limits of evidence: evidence based policy and the removal of gamete donor anonymity in the UK.

Authors:  Lucy Frith
Journal:  Monash Bioeth Rev       Date:  2015-03

4.  What should be given a priority - costly medications for relatively few people or inexpensive ones for many? The Health Parliament public consultation initiative in Israel.

Authors:  Nurit Guttman; Carmel Shalev; Giora Kaplan; Ahuva Abulafia; Gabi Bin-Nun; Ronen Goffer; Roei Ben-Moshe; Orna Tal; Mordechai Shani; Boaz Lev
Journal:  Health Expect       Date:  2008-04-21       Impact factor: 3.377

Review 5.  Communicating genetic information in the family: the familial relationship as the forgotten factor.

Authors:  Roy Gilbar
Journal:  J Med Ethics       Date:  2007-07       Impact factor: 2.903

6.  Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya.

Authors:  Vicki M Marsh; Dorcas M Kamuya; Albert M Mlamba; Thomas N Williams; Sassy S Molyneux
Journal:  BMC Med Ethics       Date:  2010-07-15       Impact factor: 2.652

7.  Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya.

Authors:  Vicki Marsh; Francis Kombe; Raymond Fitzpatrick; Thomas N Williams; Michael Parker; Sassy Molyneux
Journal:  BMC Med Ethics       Date:  2013-10-14       Impact factor: 2.652

8.  The embryo as moral work object: PGD/IVF staff views and experiences.

Authors:  Kathryn Ehrich; Clare Williams; Bobbie Farsides
Journal:  Sociol Health Illn       Date:  2008-04-28
  8 in total

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