Literature DB >> 10750206

Patients with cancer holding their own records: a randomised controlled trial.

M Drury1, P Yudkin, J Harcourt, R Fitzpatrick, L Jones, C Alcock, M Minton.   

Abstract

BACKGROUND: The burden of cancer care in general practice is increasing. Patient-held records may facilitate effective, coordinated care, but no randomised controlled trials of their use in cancer care have been conducted, and concerns about possible negative effects remain. AIM: To evaluate the use of a supplementary patient-held record in cancer care.
METHOD: Six hundred and fifty radiotherapy outpatients with any form of cancer were randomised either to hold a supplementary record or to receive normal care. It was explained to record holders that the supplementary record was intended to improve communication with health professionals and act as an aide memoire. After three months, patients' satisfaction with communication and with participation in their own care were assessed. Global health status, emotional functioning, and cognitive functioning were measured using the European Organization for Research and Treatment of Cancer QLQ-C30 questionnaire.
RESULTS: There were no significant differences between groups in any of the outcome measures. Patients in both groups expressed a high level of satisfaction with communication and participation in their care. Mean (SD) scores in the intervention and control groups were: global health status, 66.8 (24.2) and 65.3 (23.7); emotional functioning, 75.0 (24.6) and 77.4 (22.8); cognitive functioning, 84.5 (21.0) and 84.0 (21.3).
CONCLUSION: A supplementary patient-held record for radiotherapy outpatients appears to have no effect on satisfaction with communication, participation in care, or quality of life.

Entities:  

Mesh:

Year:  2000        PMID: 10750206      PMCID: PMC1313626     

Source DB:  PubMed          Journal:  Br J Gen Pract        ISSN: 0960-1643            Impact factor:   5.386


  16 in total

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Journal:  Br J Gen Pract       Date:  1991-06       Impact factor: 5.386

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  21 in total

1.  I am a good patient, believe it or not.

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Authors:  Lisa M Wintner; Johannes M Giesinger; Georg Kemmler; Monika Sztankay; Anne Oberguggenberger; Eva-Maria Gamper; Barbara Sperner-Unterweger; Bernhard Holzner
Journal:  Wien Klin Wochenschr       Date:  2012-04-27       Impact factor: 1.704

Review 4.  Interventions for improving older patients' involvement in primary care episodes.

Authors:  R Wetzels; M Harmsen; C Van Weel; R Grol; M Wensing
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Authors:  N Archer; U Fevrier-Thomas; C Lokker; K A McKibbon; S E Straus
Journal:  J Am Med Inform Assoc       Date:  2011 Jul-Aug       Impact factor: 4.497

6.  Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial.

Authors:  R B Jones; J Pearson; A J Cawsey; D Bental; A Barrett; J White; C A White; W H Gilmour
Journal:  BMJ       Date:  2006-04-05

7.  Pragmatic randomised trial to evaluate the use of patient held records for the continuing care of patients with cancer.

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Journal:  Qual Health Care       Date:  2001-09

Review 8.  Patients' views on the effectiveness of patient-held records: a systematic review and thematic synthesis of qualitative studies.

Authors:  Samantha A Sartain; Samantha Stressing; Jacqui Prieto
Journal:  Health Expect       Date:  2014-07-24       Impact factor: 3.377

9.  Overcoming structural constraints to patient utilization of electronic medical records: a critical review and proposal for an evaluation framework.

Authors:  Warren J Winkelman; Kevin J Leonard
Journal:  J Am Med Inform Assoc       Date:  2003-11-21       Impact factor: 4.497

10.  Patients' experiences when accessing their on-line electronic patient records in primary care.

Authors:  Cecilia Pyper; Justin Amery; Marion Watson; Claire Crook
Journal:  Br J Gen Pract       Date:  2004-01       Impact factor: 5.386

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