D A Raines1. 1. Virginia Commonwealth University, School of Nursing, Richmond 23298-0567, USA. DARAINES@vcu.edu
Abstract
PURPOSE: To develop an understanding of the experiences of women who give birth to an infant with a genetic anomaly not identified during the prenatal period. DESIGN: Exploratory design using selected qualitative methods. SAMPLE: Seven mothers of liveborn infants with a genetic anomaly characterized by physical attributes evident at birth. MAIN OUTCOME VARIABLE: Mother's expressions of suspended mothering. RESULTS: Two themes emerged that characterize the experience of suspended mothering: diminished maternal role and false protection. PRACTICE RECOMMENDATIONS: Facilitating maternal involvement in decision making requires giving women unbiased information in a supportive manner.
PURPOSE: To develop an understanding of the experiences of women who give birth to an infant with a genetic anomaly not identified during the prenatal period. DESIGN: Exploratory design using selected qualitative methods. SAMPLE: Seven mothers of liveborn infants with a genetic anomaly characterized by physical attributes evident at birth. MAIN OUTCOME VARIABLE: Mother's expressions of suspended mothering. RESULTS: Two themes emerged that characterize the experience of suspended mothering: diminished maternal role and false protection. PRACTICE RECOMMENDATIONS: Facilitating maternal involvement in decision making requires giving women unbiased information in a supportive manner.