OBJECTIVE: To develop a questionnaire to assess perceived ability to manage juvenile chronic arthritis (JCA) among adolescents and parents. METHODS: The questionnaire contained 24 (parents' version) and 23 (adolescents' version) questions accompanied by visual analog scales in the areas of knowledge, skill, behavior, attitudes, and self-efficacy. One hundred seven persons participated in the examination of validity and 25 in the examination of test-retest reliability. RESULTS: Factor analyses indicated that the questionnaire, now termed the MEPS (abbreviation for "medical issues, exercise, pain, and social support") questionnaire, contained 4 underlying dimensions: medical issues, exercise, pain, and social support, including 9, 4, 7, and 4 questions, respectively. The content of the questionnaire was judged mainly to be easily understood, relevant, and exhaustive. Intraclass correlation coefficients for the test-retest reliability of the questionnaire answers over a week ranged from 0.68 to 0.96 for single questions. CONCLUSION: The MEPS questionnaire appears to be a valid and reliable tool for assessing the perceived ability to manage JCA. Whether it is sufficiently responsive to interventions remains to be investigated.
OBJECTIVE: To develop a questionnaire to assess perceived ability to manage juvenile chronic arthritis (JCA) among adolescents and parents. METHODS: The questionnaire contained 24 (parents' version) and 23 (adolescents' version) questions accompanied by visual analog scales in the areas of knowledge, skill, behavior, attitudes, and self-efficacy. One hundred seven persons participated in the examination of validity and 25 in the examination of test-retest reliability. RESULTS: Factor analyses indicated that the questionnaire, now termed the MEPS (abbreviation for "medical issues, exercise, pain, and social support") questionnaire, contained 4 underlying dimensions: medical issues, exercise, pain, and social support, including 9, 4, 7, and 4 questions, respectively. The content of the questionnaire was judged mainly to be easily understood, relevant, and exhaustive. Intraclass correlation coefficients for the test-retest reliability of the questionnaire answers over a week ranged from 0.68 to 0.96 for single questions. CONCLUSION: The MEPS questionnaire appears to be a valid and reliable tool for assessing the perceived ability to manage JCA. Whether it is sufficiently responsive to interventions remains to be investigated.
Authors: Mark Connelly; Laura E Schanberg; Stacy Ardoin; Michael Blakley; Ruy Carrasco; Peter Chira; Kristen Hayward; Maria Ibarra; Yukiko Kimura; Daniel J Kingsbury; Marisa S Klein-Gitelman; Erica Lawson; Jennifer Stinson Journal: J Pediatr Psychol Date: 2019-04-01
Authors: Siobhan O'Higgins; Jennifer Stinson; Sara Ahola Kohut; Line Caes; Caroline Heary; Brian E McGuire Journal: BMJ Open Date: 2019-12-15 Impact factor: 2.692
Authors: Jennifer N Stinson; Chitra Lalloo; Amos S Hundert; Sarah Campillo; Tania Cellucci; Paul Dancey; Ciaran Duffy; Janet Ellsworth; Brian M Feldman; Adam M Huber; Nicole Johnson; Geert't Jong; Kiem Oen; Alan M Rosenberg; Natalie J Shiff; Lynn Spiegel; Shirley M L Tse; Lori Tucker; Joseph Charles Victor Journal: J Med Internet Res Date: 2020-07-29 Impact factor: 5.428