Literature DB >> 10635509

Autonomy, liberalism and advance care planning.

S Ikonomidis1, P A Singer.   

Abstract

The justification for advance directives is grounded in the notion that they extend patient autonomy into future states of incompetency through patient participation in decision making about end-of-life care. Four objections challenge the necessity and sufficiency of individual autonomy, perceived to be a defining feature of liberal philosophical theory, as a basis of advance care planning. These objections are that the liberal concept of autonomy (i) implies a misconception of the individual self, (ii) entails the denial of values of social justice, (iii) does not account for justifiable acts of paternalism, and (iv) does not account for the importance of personal relationships in the advance care planning process. The last objection is especially pertinent in light of recent empirical research highlighting the importance of personal relationships in advance care planning. This article examines these four objections to autonomy, and the liberal theoretical framework with which it is associated, in order to re-evaluate the philosophical basis of advance care planning. We argue that liberal autonomy (i) is not a misconceived concept as critics assume, (ii) does not entail the denial of values of social justice, (iii) can account for justifiable acts of paternalism, though it (iv) is not the best account of the value of personal relationships that arise in advance care planning. In conclusion, we suggest that liberalism is a necessary component of a theoretical framework for advance care planning but that it needs to be supplemented with theories that focus explicitly on the significance of personal relationships.

Entities:  

Keywords:  Analytical Approach; Professional Patient Relationship

Mesh:

Year:  1999        PMID: 10635509      PMCID: PMC479306          DOI: 10.1136/jme.25.6.522

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  17 in total

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Journal:  Prof Ethics       Date:  1993 Spring-Summer

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Authors:  M Danis; L R Churchill
Journal:  Hastings Cent Rep       Date:  1991 Jan-Feb       Impact factor: 2.683

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Journal:  Eur Arch Otorhinolaryngol       Date:  1992       Impact factor: 2.503

6.  Patient Self-Determination Act. Trumping advance directives.

Authors:  D W Brock
Journal:  Hastings Cent Rep       Date:  1991 Sep-Oct       Impact factor: 2.683

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Authors:  P G Clark
Journal:  Gerontologist       Date:  1991-10

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Authors:  D K Martin; E C Thiel; P A Singer
Journal:  Arch Intern Med       Date:  1999-01-11

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Authors:  J Hardwig
Journal:  Hastings Cent Rep       Date:  1990 Mar-Apr       Impact factor: 2.683

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Authors:  S J Eisendrath; A R Jonsen
Journal:  JAMA       Date:  1983-04-15       Impact factor: 56.272

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  8 in total

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Journal:  Med Health Care Philos       Date:  2015-05

2.  Would they follow what has been laid down? Cancer patients' and healthy controls' views on adherence to advance directives compared to medical staff.

Authors:  S Sahm; R Will; G Hommel
Journal:  Med Health Care Philos       Date:  2005

3.  The ethics of surgery in the elderly demented patient with bowel obstruction.

Authors:  P Gallagher; K Clark
Journal:  J Med Ethics       Date:  2002-04       Impact factor: 2.903

4.  Adherence to advance directives in critical care decision making: vignette study.

Authors:  Trevor Thompson; Rosaline Barbour; Lisa Schwartz
Journal:  BMJ       Date:  2003-11-01

5.  The development and validation of the advance care planning questionnaire in Malaysia.

Authors:  Pauline Siew Mei Lai; Salinah Mohd Mudri; Karuthan Chinna; Sajaratulnisah Othman
Journal:  BMC Med Ethics       Date:  2016-10-18       Impact factor: 2.652

6.  MVP-Medical Situation, Values, and Plan: A Memorable and Useful Model for All Serious Illness Conversations.

Authors:  Robert K Horowitz; Laura A Hogan; Thomas Carroll
Journal:  J Pain Symptom Manage       Date:  2020-07-30       Impact factor: 3.612

7.  Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature.

Authors:  Carlos Gómez-Vírseda; Yves de Maeseneer; Chris Gastmans
Journal:  BMC Med Ethics       Date:  2019-10-26       Impact factor: 2.652

8.  Relational autonomy: lessons from COVID-19 and twentieth-century philosophy.

Authors:  Carlos Gómez-Vírseda; Rafael Amo Usanos
Journal:  Med Health Care Philos       Date:  2021-06-26
  8 in total

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