Literature DB >> 10568904

Discordance between patients and their physicians in the assessment of lupus disease activity: relevance for clinical trials.

J C Yen1, C Neville, P R Fortin.   

Abstract

Discordance between patient and physician assessment of lupus activity occurs frequently and its determinants are not known. Examples of discordance between patients and physicians in other disease models can be found in the literature. A better understanding of the discordance between patients and physicians can help us achieve a shared decision-making model of health care, improve patient satisfaction, improve patient compliance, and improve physician understanding of how lupus impacts on their patients. Understanding discordance also impacts on the design and interpretation of clinical trials.

Entities:  

Mesh:

Year:  1999        PMID: 10568904     DOI: 10.1191/096120399680411362

Source DB:  PubMed          Journal:  Lupus        ISSN: 0961-2033            Impact factor:   2.911


  10 in total

1.  Understanding systemic lupus erythematosus patients' desired outcomes and their perceptions of the risks and benefits of using corticosteroids.

Authors:  X Ng; S dosReis; R Beardsley; L Magder; C D Mullins; M Petri
Journal:  Lupus       Date:  2017-08-31       Impact factor: 2.911

Review 2.  Patient-Reported Outcomes in Systemic Lupus Erythematosus.

Authors:  Mary Mahieu; Susan Yount; Rosalind Ramsey-Goldman
Journal:  Rheum Dis Clin North Am       Date:  2016-03-17       Impact factor: 2.670

Review 3.  Understanding the epidemiology and progression of systemic lupus erythematosus.

Authors:  Guillermo J Pons-Estel; Graciela S Alarcón; Lacie Scofield; Leslie Reinlib; Glinda S Cooper
Journal:  Semin Arthritis Rheum       Date:  2009-01-10       Impact factor: 5.532

4.  The Lived Experience of Lupus Flares: Features, Triggers, and Management in an Australian Female Cohort.

Authors:  Marline L Squance; Glenn E M Reeves; Howard Bridgman
Journal:  Int J Chronic Dis       Date:  2014-11-20

5.  Development and content validity of the Lupus Foundation of America rapid evaluation of activity in lupus (LFA-REAL™): a patient-reported outcome measure for lupus disease activity.

Authors:  Anca D Askanase; R Paola Daly; Miya Okado; Kayla Neville; Avery Pong; Leslie M Hanrahan; Joan T Merrill
Journal:  Health Qual Life Outcomes       Date:  2019-06-07       Impact factor: 3.186

6.  Understanding patient-provider discordance in adolescents with lupus: The role of pain and antidepressant medication use.

Authors:  Kathleen Kenney-Riley; Shari Salzhauer Berkowitz; Kimberly Rapoza
Journal:  Health Psychol Open       Date:  2020-12-08

7.  Patient-Reported Outcome Information Collected from Lupus Patients Using a Mobile Application: Compliance and Validation.

Authors:  Kristy Bell; Claire Dykas; Bridget Muckian; Brooke Williams; Hope Rainey; Maggy Comberg; Mary Mora; Katherine A Owen; Peter E Lipsky
Journal:  ACR Open Rheumatol       Date:  2021-11-10

8.  Concordance among patients and physicians about their ideal of autonomy impacts the patient-doctor relationship: A cross-sectional study of Mexican patients with rheumatic diseases.

Authors:  Virginia Pascual-Ramos; Irazú Contreras-Yáñez; Ana Belén Ortiz-Haro; Christiaan Molewijk Albert; Gregorio Tomás Obrador; Evandro Agazzi
Journal:  PLoS One       Date:  2020-10-29       Impact factor: 3.240

Review 9.  Patient-Reported Outcomes in Systemic Lupus Erythematosus. Can Lupus Patients Take the Driver's Seat in Their Disease Monitoring?

Authors:  Ioannis Parodis; Paul Studenic
Journal:  J Clin Med       Date:  2022-01-11       Impact factor: 4.241

10.  EQ-5D-3L full health state discriminates between drug and placebo in clinical trials of systemic lupus erythematosus.

Authors:  Julius Lindblom; Alvaro Gomez; Alexander Borg; Sharzad Emamikia; Dimitris Ladakis; Joaquin Matilla; Martin Pehr; Flordelyn Cobar; Yvonne Enman; Emelie Heintz; Malin Regardt; Ioannis Parodis
Journal:  Rheumatology (Oxford)       Date:  2021-10-02       Impact factor: 7.580

  10 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.