Literature DB >> 10464637

Who should provide genetic education prior to gene testing? Computers and other methods for improving patient understanding.

M J Green1, N Fost.   

Abstract

As numerous new gene tests are introduced into clinical practice, patients have a growing need for accurate and comprehensive information about the risks and benefits of gene testing. However, in the changing healthcare environment, it is not clear who will provide such information because genetic counselors are scarce and their services are not widely utilized, and primary care providers lack time and expertise in genetics. Interactive computers may help fill the information gap. We review a variety of educational modalities for providing patient education and argue that interactive computers have potential advantages over other educational methods for providing information and promoting informed consent to genetic testing. Finally, some questions for further research are raised.

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Mesh:

Year:  1997        PMID: 10464637     DOI: 10.1089/gte.1997.1.131

Source DB:  PubMed          Journal:  Genet Test        ISSN: 1090-6576


  6 in total

1.  Facilitating informed decisions regarding microsatellite instability testing among high-risk individuals diagnosed with colorectal cancer.

Authors:  Sharon L Manne; Neal J Meropol; David S Weinberg; Hetal Vig; Zohra Ali-Khan Catts; Cheri Manning; Eric Ross; Kristen Shannon; Daniel C Chung
Journal:  J Clin Oncol       Date:  2010-02-08       Impact factor: 44.544

2.  Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial.

Authors:  Michael J Green; Susan K Peterson; Maria Wagner Baker; Gregory R Harper; Lois C Friedman; Wendy S Rubinstein; David T Mauger
Journal:  JAMA       Date:  2004-07-28       Impact factor: 56.272

3.  Development and Initial Assessment of a Patient Education Video about Pharmacogenetics.

Authors:  Rachel Mills; Megan Ensinger; Nancy Callanan; Susanne B Haga
Journal:  J Pers Med       Date:  2017-05-25

Review 4.  Genetic data and electronic health records: a discussion of ethical, logistical and technological considerations.

Authors:  Kimberly Shoenbill; Norman Fost; Umberto Tachinardi; Eneida A Mendonca
Journal:  J Am Med Inform Assoc       Date:  2013-06-14       Impact factor: 4.497

5.  Research participants' experiences with return of genetic research results and preferences for web-based alternatives.

Authors:  Jill B Gaieski; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Sarah Walser; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Amanda Ganzak; Danielle McKenna; Jessica M Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek; Angela R Bradbury
Journal:  Mol Genet Genomic Med       Date:  2019-08-03       Impact factor: 2.183

6.  Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.

Authors:  Saskia C Sanderson; Sabrina A Suckiel; Micol Zweig; Erwin P Bottinger; Ethylin Wang Jabs; Lynne D Richardson
Journal:  Genet Med       Date:  2015-09-03       Impact factor: 8.822

  6 in total

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