Literature DB >> 10214173

A qualitative analysis of the information needs of informal carers of terminally ill cancer patients.

K E Rose1.   

Abstract

This article discusses issues relating to information arising from a qualitative study of the experiences of informal carers of terminally ill cancer patients. Qualitative data analysis, drawing on methods of literary criticism, revealed that information was a key area in carers' experience. The findings are presented in the context of needing to provide individualized care to every family and deal with information needs relating to the illness and prognosis. The question of who is in possession of what information is raised, and the effect that this can have on couples is discussed, together with the issue of false information which carers may receive. The discussion centres on the complexity of understanding carers' information needs and considers how these are affected by the context within which carers operate. The work of Glaser and Strauss on awareness contexts is discussed in this respect. Finally, the importance of the nurse's role as a sensitive mediator of information is considered.

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Year:  1999        PMID: 10214173     DOI: 10.1046/j.1365-2702.1999.00214.x

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  10 in total

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Journal:  Health Care Manag Sci       Date:  2004-08

2.  Hospice at home service: the carer's perspective.

Authors:  Dorry McLaughlin; Kate Sullivan; Felicity Hasson
Journal:  Support Care Cancer       Date:  2006-08-30       Impact factor: 3.603

3.  Information provision and patient reported outcomes in patients with metastasized colorectal cancer: results from the PROFILES registry.

Authors:  Olga Husson; Melissa S Y Thong; Floortje Mols; Tineke J Smilde; Geert-Jan Creemers; Lonneke V van de Poll-Franse
Journal:  J Palliat Med       Date:  2013-03       Impact factor: 2.947

4.  Role recognition and changes to self-identity in family caregivers of people with advanced cancer: a qualitative study.

Authors:  Anna Ugalde; Meinir Krishnasamy; Penelope Schofield
Journal:  Support Care Cancer       Date:  2011-05-25       Impact factor: 3.603

5.  Challenges Facing Families at the End of Life in Three Settings.

Authors:  Karen A Kehl; Karin T Kirchhoff; Betty J Kramer; Cyndi Hovland-Scafe
Journal:  J Soc Work End Life Palliat Care       Date:  2009-07-01

6.  Informing Severely III Patients: Needs, Shortcomings and Strategies for Improvement.

Authors:  Barbara Strohbuecker; Jan Gaertner; Stephanie Stock
Journal:  Breast Care (Basel)       Date:  2011-02-15       Impact factor: 2.860

7.  An exploratory study of end-of-life prognostic communication needs as reported by widowed fathers due to cancer.

Authors:  Eliza M Park; Devon K Check; Justin M Yopp; Allison M Deal; Teresa P Edwards; Donald L Rosenstein
Journal:  Psychooncology       Date:  2015-02-06       Impact factor: 3.894

8.  Family caregiver knowledge of treatment intent in a longitudinal study of patients with advanced cancer.

Authors:  Catherine M Burns; Tracy Dixon; Dorothy Broom; Wayne T Smith; Paul S Craft
Journal:  Support Care Cancer       Date:  2003-07-26       Impact factor: 3.603

9.  Bereaved cancer carers' experience of and preference for palliative care.

Authors:  Natasha Sekelja; Phyllis N Butow; Martin H N Tattersall
Journal:  Support Care Cancer       Date:  2009-10-12       Impact factor: 3.603

10.  What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study.

Authors:  Peter Kirk; Ingrid Kirk; Linda J Kristjanson
Journal:  BMJ       Date:  2004-05-19
  10 in total

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